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Does anyone have Cancer with autoimmune diseases

Posted by taylor05 @taylor05, 6 days ago

I have lung cancer 4.5 cm along with another spot 2.4 cm in my pelvic area with Maybe limited Sleraderma, Secondary Sjögren's, Raynouds disease , small vessel disease with antiphospholipid syndrome as well. I've had several ischemic strokes and have lower BP always. I have a team now of Dr's, but changing to John Hopkins whete my Neurologist is because I know oncology is much better there and I'm complicated to treat. I'm probably 3rd to 4th stage of Cancer and probably won't make it.. They are finding out this week what kind I have.. I don’t even smoke! Anyone else having this issue?

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taylor05 | @taylor05 | 1 day ago
In reply to @trez88 "2018 I had several clots in my lung. After several tests I was diagnosed with a..." + (show)
Profile picture for trez88 @trez88

2018 I had several clots in my lung. After several tests I was diagnosed with a rare auto immune disorder called Antiphospholipic disease. My immune system attacks my blood cells the immune system mistakenly produces antibodies that attack healthy tissues, causing excessive, dangerous blood clotting in veins and arteries. It leads to serious complications, including strokes, heart attacks, deep vein thrombosis (DVT), and pregnancy loss. The immune system makes antibodies that attack phospholipids, which are fats involved in blood cell membranes.
2025 I was diagnosed with Polycythemia Vera after complaining about nose bleeds, headaches, night sweats, dizziness and bruises. Blood work and a BMB confirmed I have blood cancer.

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@trez88. Sending huge hugs and best wishes.

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jw9 | @jw9 | 21 hours ago
In reply to @taylor05 "Wow you had your plate full too.. I'm old. 😆 67 and in 2 places plus..." + (show)
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Wow you had your plate full too.. I'm old. 😆 67 and in 2 places plus my
thyroid is either very inflammed or tumor getting ready to start growing he
said. They will look. I go Monday for what kind. What thst Dr said is
ridiculous! CTD and other autoimmune diseases can push the risk 3 to 4
times. Cancer can now increase my chances for more strokes 3 to 4 times
higher now, even with a blood thinner. No high BP ever either. I have
small blood vessel disease though... Please take care. I'm sorry you have
side effects still.. I have to have chemo and radiation..
Nadine

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@taylor05
Thank you for your good reply! But if you read what I wrote you'll see that I WAS in my 30's. By your account I'm old too, 68 and older than you! Just don't forget your immune system is a part of who you are when you have cancer!
Yes, side effects but nothing life threatening at the present time. Please let us know what kind of cancer you have, and what treatment too.
Wishing you strength in mind and body, peace for your spirit.

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foundryrat743 | @foundryrat743 | 8 hours ago
In reply to @jw9 "Sorry for the additional illness you're dealing with. Let us know what kind of cancer you..." + (show)
Profile picture for jw9 @jw9

Sorry for the additional illness you're dealing with. Let us know what kind of cancer you have.
I don't have cancer now but did experience having both at the same time.
I had autoimmune illness; Undifferentiated Connective Tissue Disease, Hashimotos Thyroiditis, an undiagnosed (possibly) lupus or RA. I was in my early 30's. At that time I also was diagnosed with 4 cm Stage II, Salivary Cancer. I had surgery and radiation.
I was able to have remission from the cancer, but side effects that have increased over the next 30 years from radiation treatments. Also, the autoimmune diagnoses have changed also.

It's a lot to go through at once! I guess I had youth on my side.
I remember a resident doctor at a major teaching hospital who told me the immune system had nothing to do with cancer! I wonder where he is now with immunotherapy available as cancer treatment?!

I think because you don't smoke it will always be in your favor. I also think that pollution is not given enough credit for causing cancer. I was an RN who mixed chemotherapy chemicals in a small room on the hospital floor. I always got a metallic taste in my mouth. When I had salivary cancer, I wondered if there was a connection.

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@jw9 Actually, I worked in a foundry for many years! That environment, with silica sand, and ferrous sulphate, and manganese fumes, csused lung cancer, and like a ‘coal miner’s’ lungs, for many, according to medical records. that were kept by the company I worked for. So, I would think that you may be correct, that mixing chemotherapy chemicals, and especially with getting a metallic taste in your mouth, likely contributed, and/or may have caused a medical disgnosis that you have now! I have several neurological and sinus problems, that I believe contributed or caused at least one of my diagnosis! So sorry that you have to go through the difficult medical path, that you are on!

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taylor05 | @taylor05 | 7 hours ago

Thank you. We shall see next week. Biopsies are to be done in about 1 week.... I hope you are OK now....

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36yrswss | @36yrswss | 4 hours ago

I had breast cancer 2024. Very small. Surgery took care of it. No radiation nor chemo nor pill. Not enough studies done on Autoimmune patients to take the pill for 5 years.

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taylor05 | @taylor05 | 4 hours ago

Lucky lady!! Very happy for you!!

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