1. < Autoimmune Diseases
Profile picture for taylor05

Does anyone have Cancer with autoimmune diseases

Posted by taylor05 @taylor05, 5 days ago

I have lung cancer 4.5 cm along with another spot 2.4 cm in my pelvic area with Maybe limited Sleraderma, Secondary Sjögren's, Raynouds disease , small vessel disease with antiphospholipid syndrome as well. I've had several ischemic strokes and have lower BP always. I have a team now of Dr's, but changing to John Hopkins whete my Neurologist is because I know oncology is much better there and I'm complicated to treat. I'm probably 3rd to 4th stage of Cancer and probably won't make it.. They are finding out this week what kind I have.. I don’t even smoke! Anyone else having this issue?

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

Profile picture for taylor05
taylor05 | @taylor05 | 14 hours ago
In reply to @trez88 "2018 I had several clots in my lung. After several tests I was diagnosed with a..." + (show)
Profile picture for trez88 @trez88

2018 I had several clots in my lung. After several tests I was diagnosed with a rare auto immune disorder called Antiphospholipic disease. My immune system attacks my blood cells the immune system mistakenly produces antibodies that attack healthy tissues, causing excessive, dangerous blood clotting in veins and arteries. It leads to serious complications, including strokes, heart attacks, deep vein thrombosis (DVT), and pregnancy loss. The immune system makes antibodies that attack phospholipids, which are fats involved in blood cell membranes.
2025 I was diagnosed with Polycythemia Vera after complaining about nose bleeds, headaches, night sweats, dizziness and bruises. Blood work and a BMB confirmed I have blood cancer.

Jump to this post

@trez88. Sending huge hugs and best wishes.

REPLY
1 reply
Profile picture for jw9
jw9 | @jw9 | 5 hours ago
In reply to @taylor05 "Wow you had your plate full too.. I'm old. 😆 67 and in 2 places plus..." + (show)
Profile picture for taylor05 @taylor05

Wow you had your plate full too.. I'm old. 😆 67 and in 2 places plus my
thyroid is either very inflammed or tumor getting ready to start growing he
said. They will look. I go Monday for what kind. What thst Dr said is
ridiculous! CTD and other autoimmune diseases can push the risk 3 to 4
times. Cancer can now increase my chances for more strokes 3 to 4 times
higher now, even with a blood thinner. No high BP ever either. I have
small blood vessel disease though... Please take care. I'm sorry you have
side effects still.. I have to have chemo and radiation..
Nadine

Jump to this post

@taylor05
Thank you for your good reply! But if you read what I wrote you'll see that I WAS in my 30's. By your account I'm old too, 68 and older than you! Just don't forget your immune system is a part of who you are when you have cancer!
Yes, side effects but nothing life threatening at the present time. Please let us know what kind of cancer you have, and what treatment too.
Wishing you strength in mind and body, peace for your spirit.

REPLY
View MoreView Less
Please sign in or register to post a reply.