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Antisynthetase or myositis support groups?
Hello, I was diagnosed with anti-oj and mi2. I am looking to connect with others either individually or via support groups. Does anyone know of any or interested in connecting? Thank you in advance.
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HugInterested in more discussions like this? Go to the Autoimmune Diseases Support Group.
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Happy to connect. I am being treated for antisynthetase syndrome since Feb. 2025. There is a myositis.org that has support groups too.
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1 ReactionGreetings! just diagnosed with this on Monday. Would like to connect with others specifically about this…FB has a couple of support groups , too. I am on prednisone 40 mg….my lungs have been rough since October (first organizing pneumonia, then a PE in late November),,,,,,plan is to add cellcept down the road. My doc first said Sjogrens,,,,then found buried (he said hard to find)
The ASyS antibody results which fit me exactly.
Are those on this list with this, mostly post covid triggered?
Penny in Wisconsin
Hi- i have been on Cell cept for a little over a year. It has stabilized my lungs and skin. However, myositis not great. Symptoms started October, 2024 (post covid, but I never contracted covid). I also started on prednisone, but, scaled up Cell cept, while scaling down prednisone.