Has anyone experienced muscle separation after a liver transplant?

Posted by lsheerin @lsheerin, Dec 29, 2024

Has anyone experienced muscle separation after a liver transplant? My husband had a liver transplant almost a year and a half ago and he developed a bulge in his stomach. We thought it was a hernia, but he had a CAT scan and there is no hernia. The gastro Dr. says it's muscle separation and the only way to correct it, is a very entailed surgery, which is cosmetic, so insurance will not pay for it. It's now a huge ball right in front of him. It looks like he has a basketball under his shirt. Not sure where to go from here????

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Profile picture for Colleen Young, Connect Director @colleenyoung

@lsheerin, has this been confirmed by your husband's transplant team? Might there be other options?

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Isherrin..me too this year will b 5 yr since my liver transplant.and 7 most after I had hernia surgery on same site and a plastic surgeon was present in surgery he put in two sheets of mesch about a yr ago I started to have same problem it is very uncomfortable.saw my surgeon and he said same thing tummy tuck.
But the way it can b presented to ins this is not for cosmetic it is a necessity. Also any one out there who has been thru this i also developing kidney problems found out my GFR is 40 !!!! Now have to see kidney Dr.!!that bridge is looking good

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Profile picture for lsheerin @lsheerin

Good Morning!
Finally got the referral to go to the new gastrologist. We have an appointment Tuesday at 1:30. I'm hopeful she will be able to give some kind of help for the muscle separation. His blood work has been perfect. Still gets it checked every other week. He also has an appointment with the transplant team on the 20th. It's a virtual visit. I'm hoping virtual is enough as we live over 2 and a half hours away. I will post what they say. Maybe it will be able to help someone else.

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@lsheerin

Hi, I have just joined this group and have been reading about the same issue that I have been suffering with since my transplant in June of 2024.
Did you get any relief after seeing the gastro doctor?

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I had hernia surgery over a year after my transplant a 8 ,x 10 piece of mesh was put in which hurt like hell for 6 months and finally is feeling better enough to go swimming with a kick board a mile a day my stomach still still sticks out but I don’t care, my pool people ask me what happened and they are thrilled to see me and what I can accomplish, I take everything as a positive which everyone should do, I’m alive is all that matters

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I am dealing with this...had two transplants within the same year...I hate the bulge also and no matter how much weight you lose it doesn't help...the liver team told me it's the way they rebuilt the abdominal wall and also did cat scan...ho hernia...tummy tuck is only option is what they told me if the plastic surgeon would even touch such a case...I am looking into it...I was at Methodist hospital in Houston tx

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Profile picture for jackie421blfdgurl @jackie421blfdgurl

Isherrin..me too this year will b 5 yr since my liver transplant.and 7 most after I had hernia surgery on same site and a plastic surgeon was present in surgery he put in two sheets of mesch about a yr ago I started to have same problem it is very uncomfortable.saw my surgeon and he said same thing tummy tuck.
But the way it can b presented to ins this is not for cosmetic it is a necessity. Also any one out there who has been thru this i also developing kidney problems found out my GFR is 40 !!!! Now have to see kidney Dr.!!that bridge is looking good

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@jackie421blfdgurl

I agree... insurance should realize it's a comfort thing not just a cosmetic thing

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Profile picture for gap @gerryp

I am just about 3 years post-liver transplant, and I have a similar bulge in my abdomen. I notice that it gets more pronounced after I eat. It almost looks like the bulge is in the shape of a liver - which is what I thought it was. Turns out, the bulge is actually my intestines pushing against the weakened abdominal wall. My posttransplant team explained to me that this was attributable to the surgery, that my abdominal wall was cut, and the muscle and fascia weakened. We are at higher risk of abdominal hernia as a result, and my team described my abdomen as “herniated”. My team is not concerned, as the herniation is not strangling my intestines - although should this happen, then I would need surgical repair. I feel great, exercise most every day, and unfortunately continue to have the bulge. I am careful when lifting or exercising and wear an abdominal binder when doing anything that puts stress on my abdomen. I have learned to live with my bulge, and really don’t want to undergo any additional abdominal surgery to repair it simply to look better. I have several transplant friends who somehow manage to have 6 pack abs after transplant. I never had them and certainly don’t have them post-transplant! I am so grateful to have my good health back and I won’t let the bulge change that.

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@gerryp That's me too. I've been told I'm not at risk for strangulation and I would rather live with it than go through another big surgery.

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