Does anyone have chronic myeloid leukemia (CML)?

@colleenyoung
Sorry for the delayed reply. I am doing well on the Dasatinib, which I started 11/1/25. Was getting blood tests every 6 weeks and seeing the oncologist/hematologist to go over the results. My last blood test was in early March and it showed the markers are continuing to drop, so I return for a blood test in 6 months and see the doctor for a return visit at that time. I continue with my daily volunteer activities and feel my body is adjusting well to the Dasatinib. Had some minor issues with sleep and being tired early on, and although the anemia is still present, I sleep between
7 - 10 hours each night and that seems to eliminate for the most part having to take an afternoon nap, although on 1-2 days a week I do take a 45 minute nap in the afternoon. My volunteer activities are all in the morning. I feel very blessed to be responding well to the medication.
Blessings for all that are following.

I was diagnosed with CML 07/03/2025. Initially I was taking 500mg hydroxyurea which decreased my white blood cells and platelets. In Oct 2025 I was switched to Danziten and slowly titrated the dose to the dosage I could tolerate, which is 142mg a day (71mg morning and 71mg nightly). I have been in remission since December 2025. Minimal side effects such as fatigue, thinning hair, sensitive scalp, skin irritation, and increased glucose.

Hello,
I’ve been on Sprycel since late 2018. Side effects have been up and down. Lots of appointments with other docs to manage different side effects. Treatment has been effective. Undetectable for over 2 years and after reading a couple recent studies on discontinuing or pausing treatment I am slowly decreasing dosage. Hoping to be able to stay treatment free for as long as possible.
Best wishes with your journey.

I was diagnosed in 2024. Started sprycel with almost no side effects. A little sun sensitivity and some body aches. Then, my insurance quit paying for Sprycel. That is when my troubles started. Started getting sick again, like before treatment. Body aches were terrible, my face started to feel hot and I was nauseous all the time. After about 3 months on generic sprycel I was switched to Tasigna. Tasigna trigger a very rare side effect called psuedoporhyria. I found out the hard way I was now completely phototoxic. The suns UVs turn me bright red and I swell all up. I itched terrible and had rashes all over my body. After a few months, This condition is so rare Dr wouldn’t acknowledge the meds were causing it. I was switched to basutinib. The phototoxicity remained. I got enough of the gastro issues and now I am on scemblix. While scemblix is definitely the least side effects, I am still completely phototoxic. I haven’t been in the sun for over a year. Dr. Still doesn’t actknowledge the side effect is from the TKI. I also live in Arizona, How convenient! I am 2.5 yrs into treatment.