Does anyone have chronic myeloid leukemia (CML)?

Posted by ilahiRameez @ilahi, Oct 25, 2023

Hi I am Rameez, 28 years old. I was diagnosed with chronic myeloid leukemia about 14 months ago. I take dasatinib tablets for the treatment. Almost an year went alright, lately I am feeling continues problems physically and emotionally. I am planning to take another opinion again. I would like to hear from someone who has the same condition and to know what medications or treatment they have done!?

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Profile picture for Colleen Young, Connect Director @colleenyoung

@crop, how are you doing? How is treatment with dasatinib (Sprycel) going?

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@colleenyoung
Sorry for the delayed reply. I am doing well on the Dasatinib, which I started 11/1/25. Was getting blood tests every 6 weeks and seeing the oncologist/hematologist to go over the results. My last blood test was in early March and it showed the markers are continuing to drop, so I return for a blood test in 6 months and see the doctor for a return visit at that time. I continue with my daily volunteer activities and feel my body is adjusting well to the Dasatinib. Had some minor issues with sleep and being tired early on, and although the anemia is still present, I sleep between
7 - 10 hours each night and that seems to eliminate for the most part having to take an afternoon nap, although on 1-2 days a week I do take a 45 minute nap in the afternoon. My volunteer activities are all in the morning. I feel very blessed to be responding well to the medication.
Blessings for all that are following.

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