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Unexplained muscle weakness
Hi! I’m a 23 year old female and I have been going through a lot of symptoms for about 6 months now. It started fatigue and heart palpitations/fast heart rate and high blood pressure and weakness/numbness in the arms. I went through tests and didn’t have any heart issues just a fast heart rate. I started medication for that and it helped. I went to neurologist because my pcp suggested it. I went through tests and a mri. Only things that was flagged on my blood test was a positive ANA screening and Vitamin D deficiency. By time I got those test back the weakness had spread to other parts of my body like my legs and causing random muscles to twitch. I had been dealing with mobility issues as well. My neurologist had recommended that I see a rheumatologist. I was also given methylpredinose like a few weeks before my blood test. I got additional blood test and an MRI of only right femur. My MRI has come back mostly normal with trace bilateral knee joint effusions. I only had one thing positive in my blood test and that was C1na antibody in myositis panel. These symptoms are making it hard for me to do everyday activities. I just want some answers and if anyone could give me some tips.
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***cn-1a AB antibody
Did the prednisone help?
Look up myasthenia gravis. It’s an autoimmune disease that causes muscle weakness. The nerves don’t communicate with the muscles. Muscles become very weak. There is a blood test for it. My husband got it following cancer. Neurologist should know about it. Good luck.
Seems you’ve had all the tests, but just in case have you had your vitamin B6 level checked?
Excess causes peripheral neuropathy and tingling in the arms, muscle spasms, lethargy and weakness are all symptoms.
Terrible for someone so young to have such distress.
Good luck in finding cause and cure.
@laura1970 I haven’t seen any effects yet. I still feel pretty much the same.
@stanfojc I got the test done at the neurologist and it was negative. She went through every single test for me she was thorough. Thank you!
@lorry I had most of those things checked and they within healthy range. My rheumatologist is going forward with a muscle biopsy. Thank you so much I’m really trying to get discouraged but it is very hard!
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2 Reactions@iillitad53 so glad. I wouldn’t wish on anyone. Good luck trying to find out what is causing your problem. ❤️
Wishing you good returns with the muscle biopsy. Let us know how it goes
Hi @iillitad53, I’m hoping this isn’t too late to reply.
I’m a 24 year old female who has very similar symptoms and experiences to you. I started having uncomfortable feeling in my right foot when I was 17 y.o. That prevented me from sleeping. I told my doctor about it and they took an x-ray of my foot and said everything was normal and so I have been dealing with it ever since.
Around 2024, the pain got so much worse. It starts with tingling, throbbing pain, and numbness. But recently the pain has escalated. One day my whole leg went numb while I was driving and my car stalled in the middle of the road. The pain, weakness, and tingling has moved into both of my feet, legs, and arms. I have unknown muscle spasms and twitching. It has made doing activities and working extremely hard. I had to go out on FMLA for 6 months and still no answers.
Similarly, when I got my blood tests back they found vitamin D, copper, iron, and vitamin b deficiencies but I have been taken prescribed supplements for those and nothing has changed. I have previously seen neurology, have gotten an EEG, two MRIs of my spinal cord, and a nerve conduction test only for all tests to come back as normal (besides some small amounts of white matter in my brain but nothing abnormal). I have also been referred to cardiology for my vision going black and spells of passing out.
I was also referred to rheumatology and my blood work has indicated low levels for my red blood cells and white blood cells but the cause is unknown. I was also prescribed prednisone. I’m still waiting for my ANA results to come back.
No one has been able to give me any answers and in the meantime I have difficulty driving, sleeping, and moving and I am frustrated with nobody knowing anything.
Were they have to find out anything with your muscle biopsy?
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