Connect
Living with Parkinson's Disease - Meet others & come say hi
Welcome to the Parkinson's Disease group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with Parkinson's or caring for someone with Parkinson's. Let's learn from each other and share stories about living well with Parkinson's, coping with the bumps and offering tips.
Chances are you'll to be greeted by fellow member and volunteer patient Mentor, Teresa (@hopeful33250), when you post to this group.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?
Like
Helpful
HugInterested in more discussions like this? Go to the Parkinson's Disease Support Group.
Connect
@hopeful33250 The best way I find to deal with stress is to remove myself from the source of the stress when possible. Obviously, it is not possible to always avoid it, and I have found that exercise, talking it out with my spouse, or doing something fun can help.
-
Like -
Helpful -
Hug
2 ReactionsHello! I am new to this group and just wanted to connect. I was diagnosed with Parkinson’s about 8 months ago but now realize that I have had symptoms for nearly a decade. I need to get past frustration that it took so long to start getting the help (medication, PT) that I need. I can’t be the only one that this has happened to.
-
Like -
Helpful -
Hug
2 Reactions@teddieann Yes, for a while I was in denial, then rationalization, then acceptance. I also lowered or stopped taking medication because I thought after a good day that I was cured! However, I was quickly reminded by the reappearance of symptoms that I was wrong. I have made every mistake that could be made with my medication, which has caused me to hide in bathrooms or pace until I unlock, but I try not to make the same mistake too many times. Sometimes, no matter what you do, the disease is going to win, and all you can do is wait it out. But getting past the mental barriers is quite important in my experience.
-
Like -
Helpful -
Hug
1 ReactionHello @teddieann and welcome to the PD support group on Mayo Clinic Connect. I agree with @nova11723 about the frustration of getting a diagnosis many years after symptoms began. I've found it works best for me to be grateful to finally have medication and a treatment plan of exercise and a readjustment of my activity levels to accommodate the disorder.
As this your first post, perhaps you could share about how you are doing with this new diagnosis. For example, how are you dealing with the symptoms of PD now? What is the most bothersome symptom you are having?