Is there anything to help stop or slow progression of MGUS?

@ajbonett hi, I am feeling desperate. Could you please give me some idea of the diet you are following?

@amyboylan1 Whole foods plant based. Very little, if any, processed foods including oils. It is time consuming but you can prep ahead a few days and that helps. We have learned to keep many foods in glass canning jars and use a suction thing to seal it. This keeps berries and other fruit in the fridge much longer without chemicals. We also started canning our own sauces so we know what is in them.

@dcuste
Good afternoon. Been awhile since we chatted but I wanted to thank you for letting us know about Stelo CGM. I finally ordered two (1 months worth) to try after my A1C labs keep showing 1 point away from prediabetes. What a great tool it is. I was shocked to see my blood sugar spike when I ate rice cakes! This will definitely help me stay on track and keep my blood sugar under control. How have you been doing? Have you found any supplements or anything else that has helped on a consistent basis? If I remember, you have IGM MGUS like I do. Mine was diagnosed in 2021 and my IGA and IGG have improved and IGM is holding steady around the 670 mark with normal light chains. Bone marrow biopsy was normal. I have been using a red/near infrared machine at home consistently after it cured my plantar fasciitis so quickly (a miracle really) and also has been a great help with degenerative disc pain so I am hopeful that it will also help control the MGUS somehow. I hope you are well.

I was first diagnosed with MGUS in 2002 - 24 years ago. I have not progressed yet so maybe I have some credibility. I should add that my hematologist for 19 of those years was certain I would progress: this was because my dad had smoldering myeloma; a paternal first cousin died of acute myelomonocytic leukemia; I had and have immunoparesis - IgM and IgA. Anyway, I had to have bloods drawn every 3 months and I saw him at least twice a year. That hematologist retired and my current hematologist, a very well known and respected MM specialist does not think I will progress. I suspect he is relying on all sorts of clinical variables - some of which are just “gut based.” I don’t know. Probably Lady Luck has played a role. Possibly taking a statin drug and also an anti-inflammatory (Celebrex) MAY have helped. (There is research supporting the role of statin drugs in preventing myeloma and also contradictory research for celebrex. ) However, i have led a happy life; been buried in my work - and still am at age 83; am physically active - walking four miles a day and swimming - in my own private pool; am and have always been mainly a vegetarian although I eat seafood; sleep well; have not had any colds, flus, etc. in more than 15 plus years; had nine Covid shots and all other recommended vaccines; do not travel except in our boat for recreation; do travel by car once s year 1500 miles one way for health care now - before it was more often.
Many people have MGUS: They just don’t know it. The research shows that those of us who are aware tend to
Live longer and fare better if we do progress. My advice to you is to “live your life.” There is research supporting the role of maintaining a normal BMI and also a plant based diet a I translate that to mean a fruit and vegetable, fish and seafood diet. And don’t forget to engage in exercise you enjoy.