1. < Lung Health
Profile picture for zebragal

Pulmonary hypertension care AZ

Posted by zebragal @zebragal, 5 days ago

Hello, anyone a pulmonary hypertension patient at Mayo AZ? What has been your experience with the doctor, nurses, and the hospital itself for PAH knowledge and care?

Interested in more discussions like this? Go to the Lung Health Support Group.

Profile picture for carculmer
carculmer | @carculmer | 5 days ago

I have been diagnosed and am being treated by a local cardiologist but have considered whether or not I should see someone at Mayo Rochester. It's a 4 hour drive from home so do-able but I just can't decide if it's necessary. I have what they are calling mild PH and just started on Jardiance. Have you not seen a local doctor?

REPLY
1 reply
Profile picture for zebragal
zebragal | @zebragal | 5 days ago
In reply to @carculmer "I have been diagnosed and am being treated by a local cardiologist but have considered whether..." + (show)
Profile picture for carculmer @carculmer

I have been diagnosed and am being treated by a local cardiologist but have considered whether or not I should see someone at Mayo Rochester. It's a 4 hour drive from home so do-able but I just can't decide if it's necessary. I have what they are calling mild PH and just started on Jardiance. Have you not seen a local doctor?

Jump to this post

@carculmer been diagnosed 11 years, my PH specialist moved put of state and so I need to find a new specialist and an accredited center.

And to answer your question, yes you need an actual PH specialist who is accredited via the PHA site. PH is a rare terminal disease, at any stage it needs specific treatment immediately to slow progression. Yes, make the drive. Or look for someone accredited but closer at the link below
https://mypha.phassociation.org/Online/Online/Search-Buddy/Find-a-Doctor.aspx

REPLY
Please sign in or register to post a reply.