Connect
← Return to Essential Thrombocytosis General Questions
Discussion
Essential Thrombocytosis General Questions
Blood Cancers & Disorders | Last Active: Apr 4 1:29pm | Replies (36)Comment receiving replies
@nohrt4me thank you for your response. I honestly haven’t taken HU off the table (even tho it does scare me) but I’m told my platelets aren’t to the point that they want to put me on it yet. He said he’d like to hold off as long as possible. Doctors here don’t know much about ET so I feel like they are learning with me.
Replies to "@nohrt4me thank you for your response. I honestly haven’t taken HU off the table (even tho..."
Connect
@sdcgcarroll My feeling is that you are better off with a doc who is conservative about when to start HU as long as he's factored in all clot risks (age, mutation type, prior clot history, etc). Hoping you can find ways to fight your fatigue. It is life-altering, but because it can't be seen, palpated, heard with a stethoscope, or measured in a lab, doctors tend to ignore it.