Anyone out there diagnosed with Pudendal Neuralgia?
I have not been on connect for quite a while since I have only recently received a diagnosis (one of many probably to come) I am looking for someone/anyone who has the pain from a surgical injury of sorts to this nerve to talk to. Is there anyone out there with Pudendal Neuralgia on connect? Thank you!
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I had a recticel repair 3 years ago and been in cronic pain ever since. Cant sleep and sit after this prolapse repair, sick of being put on different meds now on Pregablin and have had a terrible allergic reaction face red and dry itchy skin due to the dyes in the cpasule have to wait until April for a caps with no dye in it. Im sure its nerve damage in the pelvic area. Maybe its pudenul nerve but dont know.
I have suffered horribly for 6 years from chronic severe anal pain. Told I had pelvic floor dysfunction. Then told I had proctolgia fugax. I research anything I’ve never heard of. My symptoms did not match proctolgia. I stumbled across pudendal neurolgia. I had all those symptoms. My PCP and my gynecologist agreed also. I’ve been to a lot of specialists and they don’t believe me. Went to a pain specialist and he gave me a pudendal nerve block and he botched it. Now I’m 3 times worse. Now I have extreme pain, burning, pins and needles and numbness across the inside of my butt cheek, my whole butt cheek and down the back of my thigh. I was put on gabapentin and cymbalta. I was up to 2400 mg of gabapentin and no relief. I’m weaning off it now. Cymbalta only helps my state of mind most times. Going for pelvic floor dysfunction therapy soon. But my life has stopped. Can’t sit for too long and have to sit on cold packs. In constant pain which affects my daily life. Most days I just sleep all day. Been very depressed and thoughts of suicide. Now I have a phone therapist from Solace Health. It has helped. I live alone and my children live very far away. Have no friends. Live out in the boonies of Mississippi. I don’t know how I’ve made it this long but still trying. It’s very hard to get medical help when the specialists don’t believe you or dismiss you. We know our bodies better than anyone. Go to the Solace website. Covered completely by Medicare. It really does help to talk to someone. I wish you luck and hang in there
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