Orgovyx works fast

Did you restart because your PSA Was high? You don’t mention that and it’s sort of important.

Definitely interested in hearing what happened to your PSA those two drugs work really well.

@jeffmarc See my profile & graphs for the details, but briefly:

After a RALRP in Feb.2021 & a PET scan in Oct. 2021 showed a spot in a lymph gland too close to my aorta for radiation, I went on Lupron & Abiraterone for 2.5 years (Losartan was added for the last year due to high BP). For that duration, my PSA was undetectable.

In March of 2024 my oncologist took me off of hormone therapy. For the first year thereafter, my PSA was still undetectable, then it began to rise slowly, stayed around 0.10 for six months, & then crawled up to 0.14 a month ago. My oncologist wanted to wait until it got to 0.20, & then do another PET scan. I didn't see the point of waiting, only to discover that the cancer was still in the same spot. Even if it had spread, how would that make a difference in my treatment? Since my prior experience with hormone therapy had been benign, I saw no point in letting the cancer grow further.

Unless something changes, I plan to go off hormone treatment in March of 2028.

Wash, rinse, repeat.

I'll report the current PSA when I get the results back from Mayo (probably Friday).

That's nasty, waiting days for the results of a test that takes under an hour to run in a hospital lab. I'm sorry you have to deal with the extra stress.

@northoftheborder

When my cancer care was under the auspices of the Fred Hutch Cancer Center & the local U. Wash Medical Center labs, my PSA test results were available in a couple hours. They were not ultra-sensitive tests.

From where I live now, my PSA blood draws are flown (I'm presuming it's overnight) to the Mayo Clinic in Minnesota. I used to get next-day results from them, but recently it's been two to three days. I don't know if the delay is the flight, the lab, or the reporting into my local MyChart account.

I have thought of seeing if it's possible to set up a Mayo Clinic account & see my results as soon as they're done, but so far I haven't.

I'm impatient, but not that impatient (now that I'm older). It's not like I have to make a sudden decision based on the results, & I get lab draws every four weeks. I make decisions based on trends anyway.

@readandlearn
At least your doubling rate is very slow. Going back on the drugs should keep you under control for the two years you’re going to keep on it. Wishing you the best of luck. So many of us are just in this waiting game.

I have only been on Orgovyx for 9 days but already have some side-effects: hot flashes, flatulence, and sometimes out of breath.

@chipe
It’s the hot flashes get real severe we have a lot of solutions and you should ask for some help. I had very severe hot flashes and have used more than one solution.

The Embrlabs.com wave 2 Device works really well for daytime hot flashes that are too severe and keeping the nighttime hot flashes away almost completely. That’s only one solution.

Thank you for this. Right now, they are manageable, but if they get more intense, I will definitely consider this.

@northoftheborder

OK, someone is spying on me in this thread! 🙂 I suspect @colleenyoung ... 🙂

This is the quickest I have gotten a test result from Mayo Clinic in 15 months. I always get my blood drawn on a Wednesday, & my prior test results didn't even appear until Saturday!

The new PSA value from yesterday is 0.02.

@readandlearn I don't claim it's like this everywhere in Ontario (or even for many), but I'm extremely lucky — I walk to the hospital lab (~20 minute) to get jabbed for my quarterly bloodwork, and my ultrasensitive PSA result typically pops online in MyChart in about 2 hours. It's usually the last result to appear, since it takes a little longer than the other tests.