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Adding Venclexta to treatment for Waldenstrom: What to expect?
igms slowly going up after two years on ruxience and octigam and brukinsa. dr just ordered venclexta and insurance denied it🪀. any ideas? am i having a flair? is there a similar med they will approve? thanks!
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As always, the IgM values and trends guide the treatment. WM rarely "flares" on its own in the sense of jumping 50% or ? Your Dr thinks you do need a more aggressive treatment but a triple treatment isn't FDA approved. That satd, you and your Dr can appeal.
thank you ! i’ll talk to him
tomorrow
starting venclexta today along with other meds. what should i expect, sounds scary
First, I have been watching WM and now CLL for several years now. (long stories behind that) BTKis plus Venetoclax is not a common combination for WM, let alone with ruxience. It is however, getting more common with CLL. All seem to be well tolerated but be sure to stay well hydrated, etc. I suggest joining the IWMF forum for connection with other people with WM. https://groups.io/g/iwmfconnect
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3 ReactionsI have taken 400 mg of Venclexta for 18 months now. I take every day at the same time with my lunch. It does dehydrate you. Make sure you drink plenty! Also at times if I don’t eat enough with them, my stomach gets a little queasy. I have AL amyloid.
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thank you so much!! very helpful…
@triclonal much thanks… started it today..