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Multi vitamin and CKD

Posted by mkh @mkhogan, Mar 27 7:27am

When I was going through my liver transplant process, I was told to take a general multivitamin. I’ve been taking one for about six years now. As a result of my transplant, I have developed chronic kidney disease stage three due to my Tacrolimus. I watch my diet closely and have changed to more plant forward diet. I recently read that people with kidney disease should be very cautious of taking a regular multivitamin due to excessive vitamins and minerals in those that may be difficult for our kidneys to filter. The articles mention taking a renal multivitamin. Does anyone have any knowledge of this and guidance on a good multivitamin product that I could change to? I appreciate any insight. This would be an easy switch or even elimination of my vitamin if it is putting extra burden on my kidneys. Thank you!

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rep602 | @rep602 | Apr 1 11:30am

I have Stage 3b PKD. My renal dietitian recommended I stop taking Centrum as it contains Vitamins A & E which, according to her, can build up and become toxic in PKD. I don't know if that applies in general to all CKD. She recommended an Ortho B Complex for me in place of the Centrum.
Incidentally, my nephrologist never recommended any changes in my vitamins and/or adding supplements, though he was okay with her recommendations after I sought his approval.

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Ginger, Volunteer Mentor | @gingerw | Apr 2 12:11pm
In reply to @rep602 "I have Stage 3b PKD. My renal dietitian recommended I stop taking Centrum as it contains..." + (show)
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I have Stage 3b PKD. My renal dietitian recommended I stop taking Centrum as it contains Vitamins A & E which, according to her, can build up and become toxic in PKD. I don't know if that applies in general to all CKD. She recommended an Ortho B Complex for me in place of the Centrum.
Incidentally, my nephrologist never recommended any changes in my vitamins and/or adding supplements, though he was okay with her recommendations after I sought his approval.

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@rep602 Welcome to Mayo Clinic Connect! I am not familiar with PKD to understand if there are different suggested vitamin and mineral guidelines. You're right, vitamins A and E are fat soluble, and probably should not be taken in massive amounts if we have kidney concerns.
Ginger

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Cheryl, Volunteer Mentor | @cehunt57 | Apr 2 2:07pm

To the OP @mkhogan congrats on the liver transplant! I’m so sorry that the Tacrolimus has caused kidney troubles. When was your transplant?
Immune suppression/anti rejection medication has come a long way in recent years. Perhaps there is an alternative you could take? Could you ask your transplant team?
I had a pancreas transplant going on 21 years ago. I have been on Tacrolimus ever since. About 10 years ago I was undergoing pretransplant evaluation for kidney transplant. At some point I had a kidney biopsy and there was evidence of some kidney damage due to the Tacrolimus. But my Tacrolimus hasn’t been changed. I guess I am on a relatively small dose that my providers aren’t concerned about. I have recently been removed from the inactive waiting list for kidney transplant because I’ve been too healthy for too long. My eGFR is in the low 30’s. What is yours?
Regarding vitamins, minerals and supplements I try to follow my provider’s recommendations. I take calcium with vitamin D added prescribed by a Dr. because of my osteoporosis. My nephrologist adjusts the dose from time to time because of my CKD. When you have several conditions, things can become complicated. My providers aren’t concerned all in the same healthcare system so it is easier to make sure that we are all on the same page so to speak.

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Cheryl, Volunteer Mentor | @cehunt57 | Apr 2 2:18pm
In reply to @cehunt57 "To the OP @mkhogan congrats on the liver transplant! I’m so sorry that the Tacrolimus has..." + (show)
Profile picture for Cheryl, Volunteer Mentor @cehunt57

To the OP @mkhogan congrats on the liver transplant! I’m so sorry that the Tacrolimus has caused kidney troubles. When was your transplant?
Immune suppression/anti rejection medication has come a long way in recent years. Perhaps there is an alternative you could take? Could you ask your transplant team?
I had a pancreas transplant going on 21 years ago. I have been on Tacrolimus ever since. About 10 years ago I was undergoing pretransplant evaluation for kidney transplant. At some point I had a kidney biopsy and there was evidence of some kidney damage due to the Tacrolimus. But my Tacrolimus hasn’t been changed. I guess I am on a relatively small dose that my providers aren’t concerned about. I have recently been removed from the inactive waiting list for kidney transplant because I’ve been too healthy for too long. My eGFR is in the low 30’s. What is yours?
Regarding vitamins, minerals and supplements I try to follow my provider’s recommendations. I take calcium with vitamin D added prescribed by a Dr. because of my osteoporosis. My nephrologist adjusts the dose from time to time because of my CKD. When you have several conditions, things can become complicated. My providers aren’t concerned all in the same healthcare system so it is easier to make sure that we are all on the same page so to speak.

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@cehunt57 (self) whoa. Dang! I did NOT mean”providers aren’t concerned all in the same….” I meant to say my providers ARE all in the same healthcare system…….
I was proofreading my own comment and caught this. The system is filling in words that I was NOT typing! SORRY!

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