Anyone taken Evenity (romosozumab) for Osteoporosis?

Posted by arlene7 @arlene7, May 27, 2020

Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.

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Profile picture for laura @laura1961

@beachesanddreams I am taking 4 prunes a day too

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@laura1961 I’ve incorporated them into my daily diet, and I’m so glad I did.

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My Dr wants to put me on it but reluctant. Anyone have side effects ? Theresa

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Profile picture for trina24 @trina24

My Dr wants to put me on it but reluctant. Anyone have side effects ? Theresa

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@trina24

I took the full 12 mo. Great gains and no noticeable side effects. What is your reluctance?

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Profile picture for sunny65 @sunny65

Hello @jdshep , thank you for writing to me. My pain is kind of “ traveling” through all my back. Yesterday was in thoracic area- it felt like fracture, today went to my low back. I started to have a lower back pain back in April. It has been always in lower back. But when I startedEvenity in July - it became much worse. I only have pain in the spine and around rib cage. Always feels worse after injection. I talk to a couple endocrinologists about switching to Tymlos but they don’t think insurance is going to approve and they both advised me to finish all 12 injections. I am not sure if Tymlos would be different and wasn’t sure if this is right sequence after Evenity. They both said that my bone density is so bad that I must go on another bone builder right after finish Evenity. It’s very confusing. If I don’t have an excruciating pain , I could look for another doctor, but the pain is so intense that I can’t go and look for another doctor. Surgery is not an option for me.

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@sunny65 Hi! Did you ever get relief? I am in agony and am only 7 minths in.

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Profile picture for sue225 @sue225

Forteo builds bone.

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@sue225
I did the Forteo injections daily. After one month of injections, I developed a rash. It started on my legs and gradually (over a period of three days) covered over most of my body and my face swelled up like a basketball!

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Profile picture for rita55 @rita55

Thank you very much! I am 65 and started Evenity also in Nov 2020, because of my osteoporosis- I hope she keep doing well- God Bless her

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@rita55

If you don't mind my asking, did your bone density show increase after the Evenity? And what did you endocrinologist put you on after you completed your 12 months of injections? Is your bones density remaining stable?

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Profile picture for fossil @fossil

@sue225
I did the Forteo injections daily. After one month of injections, I developed a rash. It started on my legs and gradually (over a period of three days) covered over most of my body and my face swelled up like a basketball!

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@fossil I am still taking Prolia injections.
These drugs!

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Profile picture for gravity3 @gravity3

@trina24

I took the full 12 mo. Great gains and no noticeable side effects. What is your reluctance?

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@gravity3
Read it can cause heart issues.

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Profile picture for sue225 @sue225

@fossil I am still taking Prolia injections.
These drugs!

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@sue225
My endocrinologist switched me to Prolia after the bad reaction to Forteo.
Two years of Prolia and I had a pathologic hip fracture. So now I sport a rod in my femur with three nifty nine inch nails. Trying Evenity now.

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Profile picture for trina24 @trina24

@gravity3
Read it can cause heart issues.

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@trina24

Sorry you have heart issues. Be well

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