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Essential Thrombocytosis General Questions

Blood Cancers & Disorders | Last Active: Apr 4 1:29pm | Replies (36)
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@kapow

May I ask, how long did it take for HU to get your count down?

Our version apparently is the hardest to manage.

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kapow | @kapow | Mar 31 1:44pm

@janemc I was first diagnosed with high platelets (~900) when I had the stroke in Apr 2023 and by September my platelets were down around 450. I have never actually made it into the "normal" range. The closest I have ever been is 404. I started out for the first 6 months have blood tests every week (which was very difficult since they can never find a vein!), and for the last year and a half I go for tests every 4 weeks (still can't find a vein! LOL) . So I feel I am being well monitored.

I didn't know we were the hardest to manage. How are you doing?

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