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Did anyone go through a stem cell transplant? Lymphoma
What are the risks of it? My oncologist doctor advised me to have a stem cell transplant to make sure the Lymphoma do not come back. I am refusing doing it since the risks are very high. My wife and my daughter think that refusing to it is not the right decision.
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@kjs1015, you mentioned that you were going to share your experience regarding your stem cell transplant for lymphoma with @carlos12. It sounds like your transplant was successful in assisting your being clear of cancer for 5 years. If you don't mind, would you care to share your experience?
My Son (36 yr) is going through the Stem cell transplant for CLL treatment currently at MD Anderson Cancer Hospital in Houston, Tx. He is on Day + 10 since his stem cell transplant. His sister was his donor. The donor cells have begun to graft on my sons cell yet. Doctors expect then to begin now. His white blood count is 0.00. He has had high fever (103.2 F) for a few days, now a hacking cough for past 4 days ( no pneumonia yet) and just brutal tiredness. The doctors say all of these symptoms are common in SCT patients. His total hospital stay began July 17. 6 days of chemo, 2 day rest, receive donor cells, another final dose of chemo, and now the waiting game for grafting to happen. My question is can someone who has been thru this process provide me with encouragement and help me understand the process forward until going home.
Hello, @bobby2014, and welcome to Mayo Clinic Connect. So glad to hear your son was able to get a stem cell transplant. Sounds like it’s been a journey. I am certain we have other members who have undergone stem cell transplant (from a donor or autologous) or who have had a loved one go through transplant for lymphoma or other conditions who would be happy to share with you. I’d like to introduce you to @craigkopcho @bradybob @las @kjs1015 @helpful @bellaconnie @djzlady96 and @littlepixie.
I’m also tagging fellow members @reflections @azjulie and @irishk who may be able to offer some insight into stem cell transplant from a caregivers perspective.
You may also be interested in participating in this thread in the Caregivers group on Mayo Clinic Connect: https://connect.mayoclinic.org/discussion/meet-fellow-caregivers-introduce-yourself/?pg=1.
I’m so glad you found our group here. We look forward to getting to know you a bit better. If you don’t mind, can you tell us a bit more about what you might like to know about the process from here till your son goes home?
thank you
Was hoping to connect with people or care givers who have had stem cell transplant for CLL in Houston?
Hi, @bobby2014. Since I am not a medical professional personally, I don't have access to patients or caregivers in Houston who've dealt with stem cell transplant for CLL. We just have contacts within this online community, and I'm not aware of any who might fit, unfortunately. I might suggest you contact the local American Cancer Society in Houston to see what kind of support groups they might have. I'm also guessing that MD Anderson Cancer Center might know of local support groups as well.
How is your son doing?