I only use the shower chair which has become very useful. It was one I had bought for my mother before I had to put her into a home. It is easy to become fearful of these seizures. It has only happened since my seizures became Drop seizures a few years ago, after the seizures starting 20 years ago from a TBI. I do not get any warnings they are about to happen also. Mine can happen midway through a coffee also & I can be lucky to be sitting down. I am trying to stick to the keto diet which gets very hard at times, although it has not stopped the seizures.
I have read of a few people curing seizures with Carnivore which I did try for a few months but lost too much weight, so went back to keto. I had started it a few months after I was trying to pick myself up after fracturing my spine after a fall. I am feeling a lot better after 15 months & have started my exercise program again the last 6 months so may try Carnivore again at some stage.
I have recently been told by my GP there is not much more I can do. I also recently listened to a talk recommending to use a wheelchair or/& a helmet. I am using a walker now as much as I can & try to only go out when I have someone with me. This is very hard for anyone who has always been so independent.
@hpedersen
I would shower, not take a bath unless someone is with you. People have drowned in both bathtubs and showers.
Sit on floor or use a shower chair.
Install a water temperature control valve. I'd use knobs and not a handle type faucet. If a seizure occurs
With a temperature control valve the water won't scald you if you fall and push the handle to hot. There are also automatic shut off valves and specialized drains making it virtually impossible to block the drain if you fall during a seizure.
Some drains go wall to wall in both directions. Admittedly an expensive option but other devices are available like belts.
Make sure you're always able to get in the bathroom and don't lock the door. If necessary have the bathroom door open outward in case a person falls against the door.
Take care,
Jake
@hpedersen
I would shower, not take a bath unless someone is with you. People have drowned in both bathtubs and showers.
Sit on floor or use a shower chair.
Install a water temperature control valve. I'd use knobs and not a handle type faucet. If a seizure occurs
With a temperature control valve the water won't scald you if you fall and push the handle to hot. There are also automatic shut off valves and specialized drains making it virtually impossible to block the drain if you fall during a seizure.
Some drains go wall to wall in both directions. Admittedly an expensive option but other devices are available like belts.
Make sure you're always able to get in the bathroom and don't lock the door. If necessary have the bathroom door open outward in case a person falls against the door.
Take care,
Jake
Thanks, Chris.
I am asking for my daughter. She lives with me and is very independent. She has no warnings of a seizure coming - sometimes mid conversation or mid sip of coffee. The focal seizures last about 30 seconds, she doesn't lose conciseness, but if she is not sitting, she usually falls down. I seem to be having more fear than she does and appreciate the advice - Don't let fear of having a seizure control your life! I have added handles, non-slip stickers, and am contemplating a shower chair.
@hpedersen welcome to the group. I use a shower chair, works great to wash my feet and sit in comfort of the heat. i do not shower without someone in the house when i do. fell out once had all kinds of attention in seconds, thank God for shower curtains you cant see through. my caregiver cleaned the mess i made while i recovered. after that added an extra hand rail that clamps onto the tub itself, i could sit and had the extra benefit of something to grab onto. eased my mindset considerably. Have a blessed day.
@hpedersen welcome to the group. I use a shower chair, works great to wash my feet and sit in comfort of the heat. i do not shower without someone in the house when i do. fell out once had all kinds of attention in seconds, thank God for shower curtains you cant see through. my caregiver cleaned the mess i made while i recovered. after that added an extra hand rail that clamps onto the tub itself, i could sit and had the extra benefit of something to grab onto. eased my mindset considerably. Have a blessed day.
@hpedersen welcome to the group. I use a shower chair, works great to wash my feet and sit in comfort of the heat. i do not shower without someone in the house when i do. fell out once had all kinds of attention in seconds, thank God for shower curtains you cant see through. my caregiver cleaned the mess i made while i recovered. after that added an extra hand rail that clamps onto the tub itself, i could sit and had the extra benefit of something to grab onto. eased my mindset considerably. Have a blessed day.
@hpedersen welcome to the group. I use a shower chair, works great to wash my feet and sit in comfort of the heat. i do not shower without someone in the house when i do. fell out once had all kinds of attention in seconds, thank God for shower curtains you cant see through. my caregiver cleaned the mess i made while i recovered. after that added an extra hand rail that clamps onto the tub itself, i could sit and had the extra benefit of something to grab onto. eased my mindset considerably. Have a blessed day.
@hpedersen welcome to the group. I use a shower chair, works great to wash my feet and sit in comfort of the heat. i do not shower without someone in the house when i do. fell out once had all kinds of attention in seconds, thank God for shower curtains you cant see through. my caregiver cleaned the mess i made while i recovered. after that added an extra hand rail that clamps onto the tub itself, i could sit and had the extra benefit of something to grab onto. eased my mindset considerably. Have a blessed day.
@hpedersen welcome to the group. I use a shower chair, works great to wash my feet and sit in comfort of the heat. i do not shower without someone in the house when i do. fell out once had all kinds of attention in seconds, thank God for shower curtains you cant see through. my caregiver cleaned the mess i made while i recovered. after that added an extra hand rail that clamps onto the tub itself, i could sit and had the extra benefit of something to grab onto. eased my mindset considerably. Have a blessed day.
@randallshields56 also found out shower flip flops that have the grip pads or skid proof padding so you don't slide if getting up or turning around. A travel support bar to tighten on the side of the tub one side in the tub equal side on the outside with a handle that is 18 inches top to bottom once tightened to the tub. Great for getting in or out, pulling yourself up to kneeling position getting out. overall this one piece of equipment outdid the others as to constant security feeling and assistance in the shower.
I have had two things happen to me in the shower.
I broke my nose when I was 17 when I had a seizure.
I ended up busting my head open 20 years later. and I pulled the shower curtain down.
I always just made sure someone was home.
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I only use the shower chair which has become very useful. It was one I had bought for my mother before I had to put her into a home. It is easy to become fearful of these seizures. It has only happened since my seizures became Drop seizures a few years ago, after the seizures starting 20 years ago from a TBI. I do not get any warnings they are about to happen also. Mine can happen midway through a coffee also & I can be lucky to be sitting down. I am trying to stick to the keto diet which gets very hard at times, although it has not stopped the seizures.
I have read of a few people curing seizures with Carnivore which I did try for a few months but lost too much weight, so went back to keto. I had started it a few months after I was trying to pick myself up after fracturing my spine after a fall. I am feeling a lot better after 15 months & have started my exercise program again the last 6 months so may try Carnivore again at some stage.
I have recently been told by my GP there is not much more I can do. I also recently listened to a talk recommending to use a wheelchair or/& a helmet. I am using a walker now as much as I can & try to only go out when I have someone with me. This is very hard for anyone who has always been so independent.
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6 Reactions@hpedersen
I would shower, not take a bath unless someone is with you. People have drowned in both bathtubs and showers.
Sit on floor or use a shower chair.
Install a water temperature control valve. I'd use knobs and not a handle type faucet. If a seizure occurs
With a temperature control valve the water won't scald you if you fall and push the handle to hot. There are also automatic shut off valves and specialized drains making it virtually impossible to block the drain if you fall during a seizure.
Some drains go wall to wall in both directions. Admittedly an expensive option but other devices are available like belts.
Make sure you're always able to get in the bathroom and don't lock the door. If necessary have the bathroom door open outward in case a person falls against the door.
Take care,
Jake
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8 Reactions@jakedduck1
Thanks so much for your response! Your insight is very helpful!
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3 Reactions@hpedersen welcome to the group. I use a shower chair, works great to wash my feet and sit in comfort of the heat. i do not shower without someone in the house when i do. fell out once had all kinds of attention in seconds, thank God for shower curtains you cant see through. my caregiver cleaned the mess i made while i recovered. after that added an extra hand rail that clamps onto the tub itself, i could sit and had the extra benefit of something to grab onto. eased my mindset considerably. Have a blessed day.
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9 ReactionsThank you
Thank you.
Thank you for the helpful remark.
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1 ReactionThank You for the helpful. Have a blessed day.
@randallshields56 also found out shower flip flops that have the grip pads or skid proof padding so you don't slide if getting up or turning around. A travel support bar to tighten on the side of the tub one side in the tub equal side on the outside with a handle that is 18 inches top to bottom once tightened to the tub. Great for getting in or out, pulling yourself up to kneeling position getting out. overall this one piece of equipment outdid the others as to constant security feeling and assistance in the shower.
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Helpful -
Hug
2 ReactionsI have had two things happen to me in the shower.
I broke my nose when I was 17 when I had a seizure.
I ended up busting my head open 20 years later. and I pulled the shower curtain down.
I always just made sure someone was home.
Belinda
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