← Return to How do I deal with my husband? Transplant patient changed demeanor

Discussion
Comment receiving replies
Profile picture for jeffhuegel @jeffhuegel

@dotygl what rejection medicine do they have him on? I had a bad reaction/mood swings/bad feelings on tachalimuis and the switched me to cellcept and cyclosporine and both work better. I had liver and kidney

Jump to this post


Replies to "@dotygl what rejection medicine do they have him on? I had a bad reaction/mood swings/bad feelings..."

@jeffhuegel
Thanks for writing. It took the first 14 months after his surgery for the kidney to get his blood chemistry 'correct' and fix a rejection of the kidney. He's on Tac, Cellcept and Prednisone. He has been diabetic many years prior to this transplant and had it regulated very well on insulin once a day at night. Now it is very difficult to manage some days due to the how the meds interact with he glucose more than the foods (he is meticulous what he eats/weighs it first). His doctors are very hesitant to change anything in his meds due to the first 14 months were hell. I was giving him some kind of med (don't recall now) in injection form 3X a week for 8 months during then to make up for the kidney not making the hormone to tell the bone marrow to make more red blood cells. Finally his kidney started to make that hormone and the shots I was giving him ended. About that time the CMV virus got going. THe donated kidney functions ok after the first 14 months post surgery. Now the function numbers of the kidney GFR and Creatinine are not going in the right direction and doctors are looking into this. His quality of life this entire time of 7 plus years is low. From my global online academic research with vetted studies shows this also is more common the longer you take these needed drugs. I've done so much research on this topic my head spins. Thanks for asking. Sorry for being on and on about this. Some people do great, well, so-so, not so good taking these meds. Now the new issue he is dealing with is skin cancer requiring the Moh's removal technique soon. This is a first for him though he is rarely outside and if he is, wrapped like a mummy wearing Sun glasses. He just cannot win. Thanks for writing.