I rarely read similar comments about this topic here. My spouse of over48 yrs received his kidney transplant over seven years ago. It's just us,no family near. As his healthy wife,grateful too, his mood swings and depression plus other side effects from immunosuppressive meds has me at my wits end to live with him. His personality is not the man I married anymore and he agrees. We've told his nephrologist s about we have no life,we exist. They give no suggestions to improve anything. We feel lied to about alot after the surgery. This journey is hell compated to his chemo treatments for lymphoma cancer. Years ago. He told doctors that was a picnic compared to no light at end of this transplant surgery
He refuses any counseling or support groups. I'm in my first in life depression and tried counseling over two years and felt it didn't help. I have a college degree with many courses in this subject. Often I feel like I'll lose my mind. I could write a book about all this. We both feel angry, numb, out of sorts. Friends, the few left, don't understand. The fatigue is incredible that he has daily. It took 14 months for his blood chemistry and more to get right,then covid arrived and we live isolated still . Wish transplant centers were blunt and honest before we went down this path for a kidney. I've done a lot of academic studies research global on this to ensure this occurs to others, it does.