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Do people with bad or no insurance simply die from HOCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: Mar 26 5:11pm | Replies (16)Comment receiving replies
it may be possible they never realize their condition and simply pass away from a cardiac event. I met a woman who told me people in her family died unexpectedly from 'cardiac events' and she finally wanted to look into it for herself for a diagnosis. The deaths must have been enough to be more than coincidence. So, this could be happening more than we know. I met this woman at a grocery store the day of my appointment at the same cardiology group she had gone to. They couldn't diagnosis the problem with her heart! It was a cardioloy group of about a dozen cardioligists! And no answer??? I should have turned and ran. I did end up at a very good med center in Kansas City MO so I have great drs and care. I am looking to get a sternal myectomy, at least I think that's the way I want to go. I am 72 and don't want to spend too much time trying this and that. I want to cut to the chase and get things fixed, but I'll see.
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@priscillaj I was almost 76 when I had a septal myectomy at Mayo, glad I did. There are so, so many different heart ailments that it's impossible for cardiologists to know about every single one that is lurking around. They seem to have areas of interest. If they don't know, good cardiologists reach out to colleagues as mine, well versed in HCM, did after I experienced dizziness and giddiness a couple of weeks after surgery. I was having arrythmias, took a while to figure out. It's not uncommon, unfortunately, for HCM to be undiagnosed, the husband of a friend of mine suddenly died of a "heart attack" and HCM was discovered during the autopsy. As you think about your plan of action, do get a couple of professional opinions. If you and your doctor decide on a septal myectomy, we all recommend a COE where the cardiac surgeons have done many of them. You may wish to read the thread https://connect.mayoclinic.org/discussion/what-i-learned-from-my-open-heart-surgery-part-1/ in fact, read all you can about this lifesaving surgery! In your browser, type in Mayo Clinic Septal Myectomy, there is much to read! Let us know of the progress you are making on this journey where we are all traveling companions.