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Which Seizure Trigger Is Your Hardest Battle?
For two years after my epilepsy diagnosis, I had no idea seizure triggers even existed. The doctors I saw never mentioned them. When I finally stumbled upon the concept of seizure precipitants, it felt like discovering a missing piece of my own puzzle.
That's when I turned into a detective of my own body. Armed with a daily journal, I started connecting the dots between my seizures and what came before them. Slowly, but surely, the culprits revealed themselves: gluten, low sodium, poor sleep, my menstrual cycle, stress, and anxiety. Each one a potential match that could light the fuse.
The physical triggers: poor sleep, gluten, menstrual cycle and low sodium? I've learned how to manage them better. Eliminating gluten alone slashed my seizures by 60%.
Anxiety and stress— They remain my most relentless opponents in this battle, despite my yoga practice and exercising.
Now I'm wondering: What's YOUR toughest trigger to tame?
Have you found strategies that actually work? Whether it's something you've mastered or something that still defeats you, I want to hear your story. Your experience might be exactly what someone else needs to hear today.
Share your trigger battles below—let's learn from each other!
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@santosha taking deep breaths and sometimes taking a time out
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2 ReactionsThank you for the like.
@santosha
It seems to be working out well. I see the neurologist next week for a follow up as well as the update on the MRI and EEG. I believe with other feelings I have is in the process of continued healing from the surgery especially being older compared to when I was younger. ☺️
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2 Reactions@santosha Yes they were. I'm still working on one of them. I'm trying to come up with factual dollar profits that will convince them it's worth their company's money to proceed. IMO, the easiest way to get factual numbers is use percentages. We have 3.5 million people in the U.S. who have epilepsy. For example: How many people drink coffee? How many cups per day? How many of those who drink caffeniated coffee and who have relatives of the people who have epilepsy will change to decaf? Using a conservative % of 1/3rd of that 3.5 million plus new decaf drinkers, I see big dollar profits. If anyone has any idea as to how I can gather factual numbers, please comment. I'd love to see a bold K-cup decaf. I think that's a winner. If people want a quick cup, they'll use any type of coffee. The BOLD taste is the key.
That's lovely to hear, @ellierwin! Respecting our body and mind's limits is always important — and even more so when living with epilepsy.
Chris
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@tkmoyer3
That's wonderful to hear! Wishing you all the best for your neurology appointment next week. I hope the MRI and EEG results bring good news 🙌.
Chris
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