Brain injury white matter, encephalopathy, and encephalitis

Posted by Lisa @techi, Jun 18, 2017

I was told i had white matter in my brain. My previous neurologist was saying i had conversion disorder, depression, anxiety and the list goes on. I just went tl the mayo clinic and the doctors was suprised at what ive been through and how i still handling it. I told them it was just the grace of God. They are still trying to find out things because now my ana is high and they are trying to find out why. The cardiologist l went through in the past told me l had an enlarged heart and angina. The cardiologist at the mayo clinic said you don't have heart disease only uncontrolled high blood pressure and its controlled now. Praise God. But I'm still falling and sometimes when l try to go to the bathroom or kitchen maybe enven feed the dog l cant. This Saturday l was talking to my daughter and we were laughing over the phone. I tried to get up and send the dog out and l couldnt. My husband put the wheelchair and my walker in the room. My lifeline was charging so l didnt have that on. I tried to get to the walker and i did but l couldnt get the wheelchair so l had to get down and slide to the wheelchair. I didn't know how l would get up because both brakes weren't on. I did get the other one on. I was trained in my clinical as a occupational therapy asst. about safety. I got in the wheelchair and i was able to get the dog out. Now this was a little hard because my hands was shaking. I know God was with me. I then had to get back in the room to sleep some of this off. I could only get the wheelchair up to a certain point in my beadroom and i knew i had to get in bed so l tried to pick myself up on the edge but l couldn"t so l knew if l went to the side maybe this will work. At first l tried the first time and l slide back and hit my head and my back was hurting. Now l can take anything for pain because l'm allergic to so many medicines. And it could be cause of my liver. So l tried a second time and it worked. I just had to praise God. I went to sleep for a few hours and then l was able to get up and walk. They said l have white matter in my brain and ceberal ischemia. I was also diagnosed with MS and Parkinson disease. I shouldn't be able to write, read, and even think but it onlybthe Lord l'm still alive. And now he's goven me titles to 2 books and l'm getting ready to go back to school to become a speech therapist assistant. When one door is shut God will open another if you just trust him. And through these trials l have so many learning about different types of illness and how you just have to hold you head up high because you can get through your difficulties no matter what they are. And l wouldn't trade anything l been through because it gives me so much trust in God because he will only see me through.

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Paul_2001 | @stephenluptak | Oct 25, 2018

Thank you!

Paul_2001 | @stephenluptak | Oct 25, 2018

In reply to @stephenluptak "Thank you!" + (show)

I am not allowed to drive; my wife is to ill to take me on a long trip. Are you aware of Mayo-quality care in Memphis TN?

Paul_2001 | @stephenluptak | Oct 25, 2018

In reply to @hopeful33250 "Good morning, @stephenluptak I just read your latest post and I see that you don't feel..." + (show)

Would UT-Memphis qualify as a quality, teaching, research hospital? How would I find out? Thanks!

Paul_2001 | @stephenluptak | Oct 25, 2018

In reply to @johnbishop "Hi Steve @stephenluptak, Another tool I use for researching health issues, new treatments, and clinical trials..." + (show)

@johnbishop Thank you!

Teresa, Volunteer Mentor | @hopeful33250 | Oct 25, 2018

In reply to @stephenluptak "Would UT-Memphis qualify as a quality, teaching, research hospital? How would I find out? Thanks!" + (show)

@stephenluptak

Do they have a medical school? If so, you might check out their neurologists online and see if any have specialities in the areas where you need help. Also, you could call the neurology/brain department and explain your problem and see what they say.

Teresa, Volunteer Mentor | @hopeful33250 | Oct 25, 2018

In reply to @stephenluptak "I am not allowed to drive; my wife is to ill to take me on a..." + (show)

@stephenluptak

Do you have any friends or family that might be able to help you with transportation? I have often called my church and asked for help for transportation to appointments and procedures. There are always retired people who are interested in a little adventure and willing to take a drive to help me out.

Also, I looked at the link that @jenniferhunter posted above regarding Mayo Affiliated hospitals: https://www.mayoclinic.org/about-mayo-clinic/care-network/members. I see that St. Elizabeth Hospital in Kentucky is a Mayo-affiliated. Here are the locations where they have neurologists, https://www.stelizabeth.com/find-a-location?serviceLineId=19185674-2c95-4838-b645-f97fde2a3dfa

Paul_2001 | @stephenluptak | Oct 25, 2018

In reply to @hopeful33250 "Good morning, @stephenluptak I just read your latest post and I see that you don't feel..." + (show)

Hi Teresa, thank you for your offer of help. I could use it! The Hydrocephalus Association was able to recommend several pediatric neurologists, but not for geriatrics; I'm 68.
Again, thank you for your kind response!