← Return to ET: untreated elevated platelets for over 13 years

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@janemc

Thank you Jane. It is a relief to be finally taking HU. I don’t know if I really feel result already or imagining them. The power of my mind is so strong. But I am headed in the right direction.

Unfortunately I can’t take aspirin or any NSAIDs because so have anaphylaxis allergy to them. I’ve pressed several Dr’s asking about plavix (what my brother thought they’d do) but evidently the risk or bleeding is too high 3 different Dr’s independently said NO to plavix. (I think a strange development related to von Willebrand disease, VWB, a bleeding disorder) when platelets are high.

I get your comments about the blood clotting concern of my PCP.

Thanks for remembering me and celebrating progress with me!! 😉

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Replies to "@janemc Thank you Jane. It is a relief to be finally taking HU. I don’t know..."

@mmkennedy

Meg, you'd mentioned your allergy to aspirin -- I'm sorry I forgot.

It is WONDERFUL you're responding so quickly to HU!