← Return to ET: untreated elevated platelets for over 13 years

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ET: untreated elevated platelets for over 13 years

Blood Cancers & Disorders | Last Active: Mar 26 11:22am | Replies (30)
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@mmkennedy

HOORAY that your count has dropped 120!! You have had such a long wait for a diagnosis and a good doctor.

Are you taking aspirin? For me, that set off a low-level ringing in my ears, as my thinned blood flows through my head.

As for the primary care doctor warning you about a heart attack . . . he may not have fully understood ET, but with high platelets, the risk of heart attacks (and strokes) goes up. His advice was scary, but on point.

Your suggestions are excellent -- thank you!!

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Replies to "@mmkennedy HOORAY that your count has dropped 120!! You have had such a long wait for..."
mmkennedy | @mmkennedy | Mar 22 1:17pm

@janemc

Thank you Jane. It is a relief to be finally taking HU. I don’t know if I really feel result already or imagining them. The power of my mind is so strong. But I am headed in the right direction.

Unfortunately I can’t take aspirin or any NSAIDs because so have anaphylaxis allergy to them. I’ve pressed several Dr’s asking about plavix (what my brother thought they’d do) but evidently the risk or bleeding is too high 3 different Dr’s independently said NO to plavix. (I think a strange development related to von Willebrand disease, VWB, a bleeding disorder) when platelets are high.

I get your comments about the blood clotting concern of my PCP.

Thanks for remembering me and celebrating progress with me!! 😉

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