What should I expect from Dara-CyBorD treatment for AL Amyloidosis

Expect a new lease on life. Six months of full treatment, tapering to longterm Dara only treatments.
Do you have any signs of damage to your organs- heart, liver, kidney, GI, nervous system?

@colorslides25
Right now enlarged liver, Heavy breathing - did EKG and ECHO and looks normal. Not sure about Kidneys.

Stanford diagnosed me with light chain amyloidosis and multiple myeloma. They recommended dara-CyBorD which consists of 4 drugs. If the doctor hasn't given you the info on the drugs look it up so you can see the side affects. Since Stanford isn't close the treatment was done by my local cancer center. It was 6 months of hell. All I did was go to treatment, sleep, eat, and go to the bathroom. It will affect your appetite and taste buds so you don't want to eat and things will not taste good. You might want to buy some chicken broth because everyone I talked to said it was the only thing that tasted ok. Buy diarrhea medication ahead of time instead of waiting and having family run to the store when you start having diarrhea. When I was too weak to walk to the bathroom my daughter put me on my office chair and rolled me to the bathroom. One of the side affects I got was my hearing - my hearing fluctuates. My tv level goes between 23-40 depending on what the brain-hearing is doing. My chemo brain now does not remember names and faces. I have seen some of the nurses at the chemo center for 5 years and can only remember the name of the 1st nurse I saw. At one point my kidneys were so bad they had the dialysis people talk to me. It has been 5 years and I continue with the monthly daratumumab to maintain what I have with my conditions. The doctors are amazed at how well I am doing. They never expected to see me walking around like I do. My immune system is still severely compromised so the doctor wants me to avoid people who have been traveling or come from other areas. I still have shortness of breath so can't do things like I used to. Instead of working in the yard for hours I can only work a few minutes, then sit and let my heart rate go down. Have someone that can help take care of financial things for you because your chemo brain will not function normally and you will forget to pay things or will not remember how to set up payments on the computer. I wear an apple watch to monitor my heart.