Colon inflammation or other: Don't know what I'm healing?

Posted by andreweaston @andreweaston, Mar 19 6:29am

I was in the ER and got diagnosed with inflammation on the left side of my colon. I was prescribed anti nausea medications. Home my symptoms are genuinely discomfort in my stomach area noticeable fleeling in my colon area and INSANE nausea that is only relieved by reglin and not ondanestron. Is this really just Inflammation in my colon or something else at play? My mind cant calm itself down cause im to afraid of my symptoms and how long im gonna be dealing with them.

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When was your last colonoscopy and upper endoscopy?

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Profile picture for gravity3 @gravity3

When was your last colonoscopy and upper endoscopy?

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@gravity3 about 10 months ago, i had pylori and successfully eradicated it with quad therapy. Colonoscopy was just a hemroid. There was inflammation in my stomach for gastritis but was ruled to be pylori and after quad therapy i was fully healed with only symptoms from anxiety and malnutrition to deal with. 8 months ago i was back working and perfectly fine till tacobell about 6 days ago

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Not to sound like a broken record ( I know I am) but eating at Taco Bell is a no no if you have stomach issues. I used to eat there with my kids were young and every time I felt very bloated and ill. But here is my broken record, you should be tested for Alpha Gal Syndrome AGS for short, it does wild things to your stomach. It's caused by a Lone Star tick bite, if you live anyplace they are located you should be tested and they are pretty much every where. Simple blood test go to Lab Corp or your Dr. and have it done super easy 🙂 A few months ago a healthy man in New Jersey was 40ish years old and who was a runner and he died from it. name of the test is Alpha-Gal IgE Panel.

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@andreweaston

What were the post ER instructions? "Inflammation of the colon" is pretty general; did the ER have any ideas of what could have caused it (besides Taco Bell). Have you followed up with your GI doctor?

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Profile picture for gigipatula @gigipatula

Not to sound like a broken record ( I know I am) but eating at Taco Bell is a no no if you have stomach issues. I used to eat there with my kids were young and every time I felt very bloated and ill. But here is my broken record, you should be tested for Alpha Gal Syndrome AGS for short, it does wild things to your stomach. It's caused by a Lone Star tick bite, if you live anyplace they are located you should be tested and they are pretty much every where. Simple blood test go to Lab Corp or your Dr. and have it done super easy 🙂 A few months ago a healthy man in New Jersey was 40ish years old and who was a runner and he died from it. name of the test is Alpha-Gal IgE Panel.

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@gigipatula Thanks for the headsup! I live in the valley in California so that would be 1 in a million. I also dont have 90% of the mainstream symptoms of that condition but it was interesting to be aware about! Thank you and ill follow up with this as a last resort. As for the tacobell, i dont know why i did that. Got to comfortable it feels like, im only 24 so sometimes its hard to believe im restricted like that.

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Profile picture for Susan F, Volunteer Mentor @susanf8

@andreweaston

What were the post ER instructions? "Inflammation of the colon" is pretty general; did the ER have any ideas of what could have caused it (besides Taco Bell). Have you followed up with your GI doctor?

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@susanf8 I dont smoke, Drink, or do drugs so they chopped it up to being stress. sedentary, and a unhealthy diet as a potential reason. They instructed people monitor and follow up with a GI so now im waiting another month for that phone call appointment. As of right now i feel like its getting better but its in waves. Like some days up and some days DOWN so idk whats going on. The nausea is like insane though.

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Profile picture for andreweaston @andreweaston

@susanf8 I dont smoke, Drink, or do drugs so they chopped it up to being stress. sedentary, and a unhealthy diet as a potential reason. They instructed people monitor and follow up with a GI so now im waiting another month for that phone call appointment. As of right now i feel like its getting better but its in waves. Like some days up and some days DOWN so idk whats going on. The nausea is like insane though.

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@andreweaston

Good that you have an appointment booked! Have you thought about keeping a food/symptom log and seeing if some foods bother you more than others?

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Check this out, asap…rule out the worst and focus on what helps—colonoscopy for sure, CT, etc….good luck !

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Your symptoms sound much like mine 3 years ago, except i had infrequent nausea. Please ask your doctor to look into IMHMV, a rare condition that mimics IBD, but instead obstructs blood flow to the colon (called an ischemic event) I had emergency surgery when my colon perforated and ruptured in the sigmoid and descending colon (which is the left side, like yours). Luckily, I survived because I was already at the hospital. So gratefully, they gave me a colostomy, then an ileostomy when the first reversal surgery failed. It wasn't until Mayo Rochester took on my case 4 months later when they were able to diagnose the IMHMV. I had another successful reversal surgery at Mayo to remove the rest of the disease from my remaining colon and rectum. I'm doing really well now, even with my shortened colon! This condition often isn't discovered until after the colon suffers the ischemic event, which will be emergent in nature. Dr. Kristen Rumer at Mayo was my surgeon and has seen IMHMV in a few cases. She published a paper urging GI's to investigate IMHMV in their patients who have unusual symptoms that don't respond to treatment. I hope this helps you!!

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Profile picture for mary6787 @mary6787

Your symptoms sound much like mine 3 years ago, except i had infrequent nausea. Please ask your doctor to look into IMHMV, a rare condition that mimics IBD, but instead obstructs blood flow to the colon (called an ischemic event) I had emergency surgery when my colon perforated and ruptured in the sigmoid and descending colon (which is the left side, like yours). Luckily, I survived because I was already at the hospital. So gratefully, they gave me a colostomy, then an ileostomy when the first reversal surgery failed. It wasn't until Mayo Rochester took on my case 4 months later when they were able to diagnose the IMHMV. I had another successful reversal surgery at Mayo to remove the rest of the disease from my remaining colon and rectum. I'm doing really well now, even with my shortened colon! This condition often isn't discovered until after the colon suffers the ischemic event, which will be emergent in nature. Dr. Kristen Rumer at Mayo was my surgeon and has seen IMHMV in a few cases. She published a paper urging GI's to investigate IMHMV in their patients who have unusual symptoms that don't respond to treatment. I hope this helps you!!

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@mary6787 - confirming you are talking about idiopathic myointimal hyperplasia of mesenteric veins (IMHMV)? As in this published case report?

- Atypical presentation of a rare disorder; idiopathic myointimal hyperplasia of mesenteric veins (IMHMV): Report of two cases https://www.sciencedirect.com/science/article/pii/S2210261223009689

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