Hi Sheila, Oh golly, you and your husband are both having to deal with a lot right now. You have your own health issues and your husband has been recently diagnosed with Primary Central Nervous System Lymphoma. Since we do have other members in the forum with that diagnosis, I’m going to post a couple of links for you so that you can talk directly with them.
- Anyone diagnosed with Primary Central Nervous System Lymphoma? https://connect.mayoclinic.org/discussion/primary-central-nervous-system-lymphoma/
Also, here are the results of a search for CNS in Connect. Feel free to pop into any conversation! https://connect.mayoclinic.org/search/
My heart goes out to you with experiencing caregiver burnout. It’s awful to feel so overwhelmed and burdened and then there’s the guilt. I’m raising my hand in an "I’ve been there" t-shirt. Being stressed to the max doesn’t allow for any down time for personal healing.
You are not alone in this feeling. Of course, Connect has a support group for Caregivers - to the rescue. https://connect.mayoclinic.org/group/caregivers/
Are you able to find any time for yourself to practice some mediation or escape with a hobby, walking, grandkids, etc? Speaking with a therapist can be helpful in developing some self-help coping skills - actually for both you and your husband. Would this be a possibility?
@loribmt Thank you for this and the links I will check out. I’m now trying to cone to terms with my incredible anticipatory grief.