Vulvar Cancer: Anyone else?

Posted by ali1974 @ali1974, Nov 12, 2020

Hello:
I have posted on other discussion group about my struggle with my health, previous cancer stories and concerns for my genetic history. I can’t seem to get a break. I just had a biopsy today to rule out vulvar cancer. I honestly didn’t even know there was such a thing. Has anyone been diagnosed with this and is it more common than what I have been reading?
I am BRCA2 and MSH6 positive. 2 time breast cancer and ovarian cancer survivor I have lived a drug and alcohol free life it just doesn’t end!

Alice

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

please let me know what treatment u had, and anything that can help me, i have vulvar cancer stage 2

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Profile picture for Trisher @wheaton

Hi Tally,
Welcome! I was diagnosed with vulvar cancer in April 2018. The first thing the gynecologist did after the exam was a biopsy. She then sent me to an oncologist/gynecologist. After meeting with the specialist we decided on a treatment plan. It may be helpful to see if you have a oncologist/gyn in your area. The best of luck. Let us know how you’re doing.

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@wheaton
can u please let me know how u treatment went

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Profile picture for mobilepmc @mobilepmc

@wheaton
can u please let me know how u treatment went

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@mobilepmc
Hi, I had 8 sessions of chemo and 35 of radiation. I did what the doctors and nurses said to do and asked a lot of questions. They are there to help you through this journey so don’t hesitate to bring up any concerns you have. Chemo was very easy for me. Yes, I did loose my hair and eyelashes and eyebrows but it has all grown back. For a time your life will seem like a never ending medical appointment and pretty defeating. Try to remember this all to get you cancer free.
I am extremely grateful that I am now 7 years cancer free and a survivor!
The best of luck to you and reach out to this group with any and all questions or concerns

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Anyone with valva cancer around would like to know how do you manage the bad smell coming from the valva

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Profile picture for mabosh @mabosh

Anyone with valva cancer around would like to know how do you manage the bad smell coming from the valva

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@mabosh: Welcome to Mayo Clinic Connect; a open forum for you to discuss your concerns, seek recommendations and share your experience.

I'm wondering if this is the medical condition you're inquiring about, a slight difference in spelling: https://www.mayoclinic.org/diseases-conditions/vulvar-cancer/symptoms-causes/syc-20368051.

This area refers to the external female genitalia. If cancer has been detected in the area, accompanying symptoms can include a constant, foul smelling odor. While seeking/obtaining care for the underlying issue, it's best to cleanse the area with warm water - no soap due to the possibilty of irritation. For the same reason, avoid douching or scented vaginal products. Underwear should be cotton, breathable material and avoid anything tight around the genitals, ideally sleeping without any constrictive garments at night.

Is an oncologist currently involved in providing treatment?

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Profile picture for Susan, Volunteer Mentor @grammato3

@mabosh: Welcome to Mayo Clinic Connect; a open forum for you to discuss your concerns, seek recommendations and share your experience.

I'm wondering if this is the medical condition you're inquiring about, a slight difference in spelling: https://www.mayoclinic.org/diseases-conditions/vulvar-cancer/symptoms-causes/syc-20368051.

This area refers to the external female genitalia. If cancer has been detected in the area, accompanying symptoms can include a constant, foul smelling odor. While seeking/obtaining care for the underlying issue, it's best to cleanse the area with warm water - no soap due to the possibilty of irritation. For the same reason, avoid douching or scented vaginal products. Underwear should be cotton, breathable material and avoid anything tight around the genitals, ideally sleeping without any constrictive garments at night.

Is an oncologist currently involved in providing treatment?

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@grammato3 yes same symptoms waitingbto start radiation in may unfortunately I have done almost the things you mentioned but the foul smell keeps on getting worse yhooooo

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Profile picture for mabosh @mabosh

@grammato3 yes same symptoms waitingbto start radiation in may unfortunately I have done almost the things you mentioned but the foul smell keeps on getting worse yhooooo

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@mabosh That must be uncomfortable for you. There's another possibility to consider, a medication you can ask your medical provider about: metronidazole gel 0.75% applied externally that can be helpful at reducing odors related to this type of condition.

Would you feel comfortable inquiring about this?

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Profile picture for Susan, Volunteer Mentor @grammato3

@mabosh That must be uncomfortable for you. There's another possibility to consider, a medication you can ask your medical provider about: metronidazole gel 0.75% applied externally that can be helpful at reducing odors related to this type of condition.

Would you feel comfortable inquiring about this?

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@grammato3 very I've even lost confidence at this point im ready to try everything to improve the condition im in

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Profile picture for mabosh @mabosh

@grammato3 very I've even lost confidence at this point im ready to try everything to improve the condition im in

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@mabosh, I'm tagging a few members like @tammielynn @kanderstag @wheaton @andwho @bobette1 @mobilepmc, who also have experience with vulvar cancer.

As you prepare for radiation, you might also find this discussion helpful:
- Radiation and chemo for vulvar cancer https://connect.mayoclinic.org/discussion/radiation-and-chemo-for-vulvar-cancer/

You might also wish to join the monthly support group meetings on Zoom led by a Mayo Clinic social worker. The next meeting is on Monday, May 11. See more information here:
- GYN Cancer Support Group Meeting: Women of S-Teal https://connect.mayoclinic.org/event/gyn-cancer-support-group-meeting-women-of-s-teal-84c0173f/

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