← Return to MDS diagnosis with DDX41 Germline and Somatic
DiscussionMDS diagnosis with DDX41 Germline and Somatic
Blood Cancers & Disorders | Last Active: May 6 9:50am | Replies (32)Comment receiving replies
Replies to "Hi @asarnesejr - given your anxiety, why don’t you ask for a sooner appointment and do..."
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@igorp My April 7th appointment is with the MDS doctor. I don't want to move it sooner because the results of my genetics test will be back for review on that date.
When I first started this journey I was seeing a hematologist and Anderson Cooper with all blood drawn at Labcorp. My second opinion was with the team at Penn Medicine with all blood drawn right on their campus. I have found that Penn Medicine has given me a sense of confidence in their professionalism.
My RBC went from 4.04 down to 3.48 over the last 2 months
My lymphocytes remained at 0.7 over the last 2 months
I will confirm on April 7th if a donor has been identified yet.
Any thoughts?