Yes!! Same thing here! I can’t have mine turned up past 5 or it hurts my legs and feet so bad! I turned it off and have had it off for 2 days now. I wrap my feet with 6 big patches of lidocaine with the self adhesive ace wrap.
@daxel79 were you diagnosed with neuropathy in your feet? What make of SCS do you have implanted? Lidocaine 5% (prescrptiom strength) lidocaine patches help with the scar tissue in my toes for prior surgeries.
@daxel79 were you diagnosed with neuropathy in your feet? What make of SCS do you have implanted? Lidocaine 5% (prescrptiom strength) lidocaine patches help with the scar tissue in my toes for prior surgeries.
@martyk I was diagnosed with CRPS/RSD , it started in my left foot, and has now morphed to my right foot, left hand and left side of my face. I have the Nevro HFX 10 SCS
I'm happy to hear the Medtronic worked. What part of your body did the SCS target? Where was your pain? Did a neurolgist suirgeaon perform the surgery? Thank you and good luck
@martyk
The SCS is in my spine targeting my left leg from the knee down. The pain was mostly in my left knee. Yes a neurological surgeon performed the surgery. I still have some pain but I try to maintain daily activity (while caring for my 95 year old husband). I actually feel better if I’m active; sitting and bending my knee is the worst for me.
@martyk
The SCS is in my spine targeting my left leg from the knee down. The pain was mostly in my left knee. Yes a neurological surgeon performed the surgery. I still have some pain but I try to maintain daily activity (while caring for my 95 year old husband). I actually feel better if I’m active; sitting and bending my knee is the worst for me.
I had a stenosis stimulator for severe lower back pain but I never had any relief from the pain. It was in for about 3 years and then removed so I could have an MRI.
I had a stenosis stimulator for severe lower back pain but I never had any relief from the pain. It was in for about 3 years and then removed so I could have an MRI.
I also had the same SCS as you. I found a tiny bit of relief during the first few months. Then, nothing at all. My spinal surgeon said they are a joke.
Pain management implanted it. I had it in me for 8 yrs, and when I had my 3rd (out of 4), fusion (3rd was part one of the 4th surgery, done in 2 stages), the surgeon removed it for me. I felt no different having it removed, then when I had it in. I've had it recalibrated so many times over the 8 years, and still to no avail.
I just had (on Jan 2026), a high risk full reconstruction from T10 to pelvis (61 stitches). So, needless to say, I'm suffering big time, but glad that stupid SCS is out of me.
I hope you get some relief as I did not at all.
P.S. sorry for this late reply, but I just came across this post.
Yes I've noticed when the leads moved it feels different. The first one SCS when the leads moved it felt like a 500 lb man was sitting in my chest and I couldn't breathe. It hit nerves that squeezed my chest and had to be shut off immediately. This time I kept feeling the vibration but no serious pain just annoying. Laying in bed and suddenly vibrating when I'm trying to sleep. I would feel it all different times so it wasn't just positional.
Now the Dr who installed my 2nd one will not fix the issues just remove it period. His partner said he would remove entire device and install a new one. It seems they don't just move the leads. Maybe for me it's because of where they were placed on in thoracic and one in lumbar. The entire purpose of the SCS is to get relief and let us get back to living a somewhat normal life. If we can't bend over, twist or literally have to watch every single move we make how is that a normal life. Even with my SCS I'm still in pain meds to have a more comfortable daily life, without them I would be in bed or on the couch every day. Hopefully your Dr can come up with a plan of attack to adjust your leads and not remove and replace.
@greg72 I'm scheduled for a spinal cord stimulator Boston scientific and I asked the doctor if they improve their anchors on the leads because of the lead migration problem and apparently they have constantly been trying to upgrade them to alleviate the problem so I guess I'll find out however for the first 4 weeks I can't bend my back or lift anything so that they can kind of bog themselves down. So I'll guess I'll find out if they've improved it
I have a Boston Scientific Neurological stimulator.
At first, I was hesitant, but I do believe it's helped, but, I have severe back pain so I do have to take pain medicine to help manage it. I can tell when my stimulator battery has died and needs to be recharged, my back pain doesn't ease up as much as it does when it's fully charged.
What kind of charger do you have?
@horserider79 glad to hear something positive since I'm scheduled for one I really hope I get some relief from it since it's about all that's left to try
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@daxel79 were you diagnosed with neuropathy in your feet? What make of SCS do you have implanted? Lidocaine 5% (prescrptiom strength) lidocaine patches help with the scar tissue in my toes for prior surgeries.
@martyk No, I apologize as I wasn't clear. Good that you pointed it out, though. The permanent stim, I meant.
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1 Reaction@martyk I was diagnosed with CRPS/RSD , it started in my left foot, and has now morphed to my right foot, left hand and left side of my face. I have the Nevro HFX 10 SCS
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1 Reaction@martyk
The SCS is in my spine targeting my left leg from the knee down. The pain was mostly in my left knee. Yes a neurological surgeon performed the surgery. I still have some pain but I try to maintain daily activity (while caring for my 95 year old husband). I actually feel better if I’m active; sitting and bending my knee is the worst for me.
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2 Reactions@gmaj85 Thank you.
I had a stenosis stimulator for severe lower back pain but I never had any relief from the pain. It was in for about 3 years and then removed so I could have an MRI.
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1 Reaction@fletchette Had one also. Did not work. I finally had the dead battery removed. No more implants for me.
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2 ReactionsI also had the same SCS as you. I found a tiny bit of relief during the first few months. Then, nothing at all. My spinal surgeon said they are a joke.
Pain management implanted it. I had it in me for 8 yrs, and when I had my 3rd (out of 4), fusion (3rd was part one of the 4th surgery, done in 2 stages), the surgeon removed it for me. I felt no different having it removed, then when I had it in. I've had it recalibrated so many times over the 8 years, and still to no avail.
I just had (on Jan 2026), a high risk full reconstruction from T10 to pelvis (61 stitches). So, needless to say, I'm suffering big time, but glad that stupid SCS is out of me.
I hope you get some relief as I did not at all.
P.S. sorry for this late reply, but I just came across this post.
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1 Reaction@greg72 I'm scheduled for a spinal cord stimulator Boston scientific and I asked the doctor if they improve their anchors on the leads because of the lead migration problem and apparently they have constantly been trying to upgrade them to alleviate the problem so I guess I'll find out however for the first 4 weeks I can't bend my back or lift anything so that they can kind of bog themselves down. So I'll guess I'll find out if they've improved it
@horserider79 glad to hear something positive since I'm scheduled for one I really hope I get some relief from it since it's about all that's left to try