← Return to MDS diagnosis with DDX41 Germline and Somatic

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Profile picture for Lori, Volunteer Mentor @loribmt

Hi @asarnesejr I’m glad you have been trying to get out more and just enjoy life! Distraction can be some pretty darned good medicine. It’s important not to sit and dwell on things. While you did have a little setback on this trip with getting sick at the end, try not to let that discourage you from more outings in the future.

After reading your adventures at EPCOT, if it’s any consolation, I’d probably have been having the same reaction you did! I can no longer endure oppressive heat and humidity nor intense motion such as amusement park rides. A day of that would have left me recovering for several days. So, I’d say you were a real trooper to handle all of that!
Hopefully you continue to improve daily and get your guts back in order again. It can be helpful to put some pre/probiotics back into the diet. Not supplements…at least from my doctor’s orders, they don’t want me taking any gut supplements. But there are so many foods available that help our gut biome flourish and our intestinal wall heal. If you haven’t you might try a daily serving of fat free, plain Greek yogurt. (I add a little honey or tiny bit of jam, etc. to flavor it).
Keep me posted, ok? Hugs.

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Replies to "Hi @asarnesejr I’m glad you have been trying to get out more and just enjoy life!..."

@loi just want to put in my 2 cents worth here .
My husband drinks a small cup of miso soup every morning . It has helped him a lot with his GI tract . He is also on sourdough bread .
Hope these hints help some patients . These are real foods and not supplements .ribmt