1. < Blood Cancers & Disorders
Profile picture for rbevill

What disorders cause low red blood cells?

Posted by rbevill @rbevill, Mar 10 4:31pm

Does anyone else have a disorder where your body is killing off your red blood cells? My Drs can't find a reason but for over a yr and half now I have to get blood transfusions weekly or biweekly bc my red blood cells count get so low. I'm always tired and struggle with shortness of breath.

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

Profile picture for harleewine
harleewine | @harleewine | Mar 16 10:53am
In reply to @fabia01 "@harleewine Appeal the decision to the administration — start with the Pentagon, not to the VA..." + (show)
Profile picture for fabia01 @fabia01

@harleewine Appeal the decision to the administration — start with the Pentagon, not to the VA itself.

It took decades before the VA admitted that a unique type of cancer that appeared 30 years after exposure was caused by agent orange, but finally the VA admitted it and vets got treatment.

Read the military blogs. You are not alone. A relative of mine was treated by the VA for the rest of his life once the cancer’s cause was acknowledged.

Jump to this post

@fabia01 I have gone to pentagon one other time. I think this is a great suggestion. Thankfully I am getting a pension for many other conditions from agent orange. Thankyou for your suggestion. Hwine

REPLY
Profile picture for crunchywfwf
crunchywfwf | @crunchywfwf | Mar 16 12:46pm
In reply to @harleewine "@crunchywfwf I have to take a lot of medicines because of various conditions from agent orange...." + (show)
Profile picture for harleewine @harleewine

@crunchywfwf I have to take a lot of medicines because of various conditions from agent orange. I will confer with my GP and cancer doctor to see what they say. Thank you for the receipes. Hwine47

Jump to this post

@harleewine I understand. I am getting my labs done in 2 days and we’ll see how things are going. I know chlorella helps remove toxicity from the body. I get mine on Amazon called Sun Chlorella

REPLY
Profile picture for nigel7
nigel7 | @nigel7 | Mar 16 1:13pm
In reply to @harleewine "I have what is called pancytopenia where all my blood counts are very low. I don’t..." + (show)
Profile picture for harleewine @harleewine

I have what is called pancytopenia where all my blood counts are very low. I don’t have to get blood transfusions but they’re watched closely by doctors. My blood donating is long over. I believe my condition was caused by agent orange but the veteran administration will not admit it.

Jump to this post

@harleewine There's also thread here for CCUS. (Which is what I think many of us with pancytopenia eventually get diagnosed). May or may not be helpful to you.
https://connect.mayoclinic.org/discussion/dose-anyone-else-have-ccus/

REPLY
1 reply
Profile picture for harleewine
harleewine | @harleewine | Mar 22 12:06pm
In reply to @nigel7 "@harleewine There's also thread here for CCUS. (Which is what I think many of us with..." + (show)
Profile picture for nigel7 @nigel7

@harleewine There's also thread here for CCUS. (Which is what I think many of us with pancytopenia eventually get diagnosed). May or may not be helpful to you.
https://connect.mayoclinic.org/discussion/dose-anyone-else-have-ccus/

Jump to this post

@nigel7 Thank you for that info. I will definitely will look up CCUS and see how it fits in my situation. The VA will not admit that my blood disorders were caused by AG. Until a few years ago, I gave blood every 8 weeks, B neg.

REPLY
Profile picture for crunchywfwf
crunchywfwf | @crunchywfwf | 5 days ago

You can have normal B12 in your blood but your cells might be able to use it. I have low red blood cells maybe from hypothyroidism (although I test negetative for Hashimotos) so I am trying sublingual B12 under the tongue which goes directly to the cells as it bypasses your gut. Just bought the book IBS to investigate gut issues. My B cell MGUS number have dropped from .9 to .68 after changing my diet to include intermittent fasting (6 pm-10 am), organic everything, medium roast coffee with 1 tb cacao powder, 1 tb collagen, 1 tsp creatine, and a daily 16 of warm water w/Himalayan salt before coffee, and 16 oz green drink of infused nettle tea, spirulina, chorella. Morfina, marcha tea, with squeezed freshnmyer lemon, dark leach salads, nuts, salmon, beans, hummus, grapefruit…..

REPLY
1 reply
Profile picture for crunchywfwf
crunchywfwf | @crunchywfwf | 5 days ago
In reply to @crunchywfwf "You can have normal B12 in your blood but your cells might be able to use..." + (show)
Profile picture for crunchywfwf @crunchywfwf

You can have normal B12 in your blood but your cells might be able to use it. I have low red blood cells maybe from hypothyroidism (although I test negetative for Hashimotos) so I am trying sublingual B12 under the tongue which goes directly to the cells as it bypasses your gut. Just bought the book IBS to investigate gut issues. My B cell MGUS number have dropped from .9 to .68 after changing my diet to include intermittent fasting (6 pm-10 am), organic everything, medium roast coffee with 1 tb cacao powder, 1 tb collagen, 1 tsp creatine, and a daily 16 of warm water w/Himalayan salt before coffee, and 16 oz green drink of infused nettle tea, spirulina, chorella. Morfina, marcha tea, with squeezed freshnmyer lemon, dark leach salads, nuts, salmon, beans, hummus, grapefruit…..

Jump to this post

@crunchywfwf
Oh, I also take fermented iron, zinc, and a Brazil nut for selenium and magnesium, melatonin, and Phosphatidylserine to control cortisol at night.

REPLY
View MoreView Less
Please sign in or register to post a reply.