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Moderator

Headache and Migraine Group: Let’s connect

Posted by Lisa Lucier, Moderator @lisalucier, Feb 27, 2025

Welcome to the Headache & Migraine support group on Mayo Clinic Connect.

If you or someone you care about has headaches or migraines, this is a great place to talk with others with similar experiences. It’s a welcoming forum to learn from each other and share stories about challenges, coping strategies, setbacks and what helps.

Take these steps to participate in the group:

  • Follow the group.
  • Browse topics.
  • Use the group search to find answers to your questions.
  • Introduce yourself.

Pull up a chair and chat. Why not start by introducing yourself? What is your experience, or your loved one’s experience, living with headache or migraine (i.e., what type, how long since diagnosis, how it’s managed)? Have a question, tip or story to share?

Interested in more discussions like this? Go to the Headache & Migraine Support Group.

Profile picture for ekj1234
ekj1234 | @ekj1234 | 5 days ago

I have been suffering with chronic headaches and migraines for the last 15 years. I think I have tried most of the options available to me and am currently doing the Emgality shot which make my headaches more controllable but they’re still there almost every afternoon. I just read an article about VNS or vagus nerve stimulation helping chronic headaches and migraines. (AARP newsletter). Has anyone tried this? Apparently it is FDA approved to reduce inflammation. Feedback would be most welcome.

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Profile picture for Jody aka mojo244
Jody aka mojo244 | @mojo244 | 2 days ago
In reply to @lynns21 "@bradley99 Hi Bradley, have you tried triptans for your headaches? They helped my migraines. When my..." + (show)
Profile picture for lynns21 @lynns21

@bradley99
Hi Bradley, have you tried triptans for your headaches? They helped my migraines. When my husband was your age, he had cluster headaches. Worse than migraine. They came on suddenly. He stopped drinking alcohol and other headache triggers. The doctor prescribed inderal (propranolol) and oxygen. The oxygen helped. This went on for several months and just like that they were gone. I hope you get relief.
Vitamin E caused my migraines.

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@lynns21 as for Triptans, my primary physician and migraine specialist both agreed taking me off Triptans when I turned 60 years old, they said it can cause stroke after 60.
My VA provider said he never heard of the caution but didn’t want to over ride the other 2 providers…all I know is that Sumatriptan works but I’m left with no relief due to high copayments of other migraine medications 🤷‍♂️

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