Hydrocephalus: Anyone else?

I'm sorry to hear that, Sumera. What are your options now?

Go to Buffalo NY UBMD Dr Fahrmbach and Dr R Reynolds

Thank you for asking as I’m frustrated . The neurosurgeon I consulted with said my ventricles aren’t large enough for a shunt. The neurologist implies I have to have a clinical presentation of NPH to qualify for surgery, meaning that I have dementia full time . Right now I’m episodic, and I’ve been hospitalized 9 times. It seems that heat and exercise are difficult for me.

What symptoms did you have prior to ETV? How did you decide to have the surgery?

There is a surgery that you should look into and research! They is called Choroid Plexus Cauterization (CPC) and Endoscopic Third Ventriculostomy (ETV). I hope this helps!!

this may be off topic a bit but was wondering if anyone has heard about hydrocepholus caused by agent orange. i was in vietnam and also have bladder cancer and prostrate cancer its all quiet now. oh yes i am 80 yrs old and goy the cancers when i was 75 years old. the hydrocephalus came on after the second bladder cancer surgery. any help would be appreciated thankyou

john

Hello my name is John and I have hydrosephaus I got it just after my second bladder cancer surgery. The vA gave me a rating for disability also prostrate cancer the cancers were caused by agent orange from Vietnam. I was there ion the service has any one got that from agent orange. It is a nerve thing thanks for taking time to read this

I have hydrocephalus and wondering if anyone has heard input agent orange causing it. I am a Vietnam

M veteran and have had prostrate cancer and twice I have had bladder cancer also high blood pressure a
Lk these are presumed by the va to be caused by agent orange I will look for an answer thank you

Welcome @johns92118, Sorry to hear you are dealing with multiple conditions due to agent orange exposure. I'm also a Vietnam veteran but fortunately had no exposure. There may possibly be a connection or link but the one I've seen listed by the VA is birth defects for women Vietnam veterans (Hydrocephalus due to aqueductal stenosis) - Vietnam Veterans: Is Your Medical Condition on the Agent Orange Presumptive List?: https://vaclaimsinsider.com/agent-orange-presumptive-list/.

I did find another reference but it's also related to birth defects:
"In Vietnam, the Vietnamese Red Cross also associates the following with exposure to dioxin: liver cancer; lipid metabolism disorder; reproductive abnormalities and congenital deformities such as cleft lip, cleft palate, club foot, hydrocephalus, neural tube defects, fused digits, muscle malformations and paralysis; and some developmental disabilities."
--- Health Effects: https://www.aspeninstitute.org/programs/agent-orange-in-vietnam-program/health-effects/.

I'm not sure if you have already seen this but it might provide some answers for you.
--- Agent Orange exposure and VA disability compensation: https://www.va.gov/disability/eligibility/hazardous-materials-exposure/agent-orange/.

Have you talked with or contacted the Veteran's Administration?

Thirteen years ago, I was diagnosed with Hydrosephlus and wound up in surgery with a neuro surgeon. He inserted a shunt in my head and now, after 13 years, it has decided to die and the hydrosephulus is back. I find it difficult to walk and very dizzy. I contacted the original surgeon's office and was told I had to get a primary doctor to set up appointment to be seen. Yikes. My orignal has retired at age 92, so got to get a new one. I'm hoping all my shunt needs is a magnet adjustment and not a whole new one. Have to travel back to see original doctor. More probems.