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Anyone out there have a T cell large granular lymphoma leukemia

Posted by beekindtobees @beekindtobees, Mar 12 5:44pm

I was diagnosed with this disease and wondering what I have to look forward to and what treatment plan is being used. So far I’ve been told to give blood tested every three months and wait and see.

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Colleen Young, Connect Director | @colleenyoung | Mar 15 5:20pm
In reply to @beekindtobees "The blog is not letting me send you my email address and yours disappeared" + (show)
Profile picture for beekindtobees @beekindtobees

The blog is not letting me send you my email address and yours disappeared

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@beekindtobees and @paul1940, please see the Community Guidelines https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/

Mayo Clinic Connect is a public forum. To share personal contact information, it is better to use the secure private message function. I’d like to underline the benefit of sharing in the group discussions. By posting in the discussions in the group you benefit from the knowledge and experience of many members.

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paul1940 | @paul1940 | Mar 15 9:35pm
In reply to @colleenyoung "@beekindtobees and @paul1940, please see the Community Guidelines https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/ Mayo Clinic Connect is a public forum...." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

@beekindtobees and @paul1940, please see the Community Guidelines https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/

Mayo Clinic Connect is a public forum. To share personal contact information, it is better to use the secure private message function. I’d like to underline the benefit of sharing in the group discussions. By posting in the discussions in the group you benefit from the knowledge and experience of many members.

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@colleenyoung I concur, Colleen. I just thought that posting publicly one's blood chemistry might be going too far?

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beekindtobees | @beekindtobees | Mar 15 9:49pm
In reply to @colleenyoung "@beekindtobees and @paul1940, please see the Community Guidelines https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/ Mayo Clinic Connect is a public forum...." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

@beekindtobees and @paul1940, please see the Community Guidelines https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/

Mayo Clinic Connect is a public forum. To share personal contact information, it is better to use the secure private message function. I’d like to underline the benefit of sharing in the group discussions. By posting in the discussions in the group you benefit from the knowledge and experience of many members.

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@colleenyoung thanks for the information. I just need to figure out how to find that private message function

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Mentor
Lori, Volunteer Mentor | @loribmt | Mar 16 9:32am
In reply to @beekindtobees "@colleenyoung thanks for the information. I just need to figure out how to find that private..." + (show)
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@colleenyoung thanks for the information. I just need to figure out how to find that private message function

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Hi, @beekindtobees To find the private message function, simply click on the avatar (member photo) to the left of their message. It will take you to their profile page.
Under the photo, you’ll see where it says, Send Private Message. Click there and the application will open where you can send private correspondence.

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