Reclast infusion side effects?

penny57. I don't know if this is relevant to your situation. Reclast causes uveitis in some people because it excites inflammatory cytokines. Uveitis is often mistaken as an eye infection. Uveitis needs to be treated because it can cause permanent damage to vision. The treatment is ocular steroid. A five day oral steroid pack would relieve some of the pain you are experiencing in your joints.
You are so right about our need to take care of ourselves.
I hope you are feeling better soon.

@penny57 I am so sorry to hear about those side effects, they sound horrible. Was that your first infusion?

I know Drs often minimize reports of side effects. Sometimes I wonder if that's so they don't have to deal with the problems from it, so they blame the side effects on another drug, illness or something else.

That's one reason that, so far, I've refused any of the bone meds. I can't take Forteo or Tymlos due to parathyroid issues, so that leaves Evenity and bisphosphonates as my only options. Evenity is so new, and bisphosphonates don't offer much fracture prevention. For now, I am just doing all I can to remain fracture free.

I hope your symptoms resolve soon. Keep us posted.

@tiza I agree, patients must inform their doctors and report side effects. to the FDA. https://www.center4research.org/report-problems-medical-products-fda/

However, the FDA and Novartis, who sells Reclast, are aware of the side effects, as they are stated in the drug literature given when the meds are prescribed. In addition, Novartis has been sued regarding the side effects. https://lawgud.com/lawsuit/reclast-lawsuit/

@penny57
I’m so sorry… this is so recurrent
We need to create a data base of these cases and report it to the FDA or the Drug Company.
I hope you feel better.

@tiza We need something better for reactions to this medication. I am going to get in touch with the FDA next week. I am a little better today but scared it might come back.

Penny

@tiza I agree, patients must inform their doctors and report side effects. to the FDA. https://www.center4research.org/report-problems-medical-products-fda/

However, the FDA and Novartis, who sells Reclast, are aware of the side effects, as they are stated in the drug literature given when the meds are prescribed. In addition, Novartis has been sued regarding the side effects. https://lawgud.com/lawsuit/reclast-lawsuit/

Hello,
I’m new to this forum.
I had a Reclast Infusion in May 2025. After a year dealing with knee pain issues my Dexa Scan results were terrible.
My endocrinologist had already suggested I’d need it, after doing some research I refused it for about 5 years.
Since the infusion, I’ve had digestive problems and pain on my left ribs. Strangely, on the first 24 hours after the infusion this is the exact place where I had intense sharp pain. It’s mostly during the night and in the morning.
Anyone experiencing the same?
Thank you!

After Reclast I have hurt worse than I did after back surgery! L3,4,5 laminectomy with fusion. Did great. Very little pain. With Reclast… sore, painful muscle aches, sore joints. Miserable and I’m a very active person. Walking, 5 yoga classes a week. Won’t do that again…. Plus the other side effects it could have!

@shmbrd Have you considered taking an oral form of a bisphosphonate instead of an infusion? At least then you would be getting a lower dose and could stop the drug if you have side effects.

I don't mean to provide medical advice but check into the "absolute risk" and benefit ratio of bisphosphonates. Several studies show they may improve DEXA scores but offer minimal benefits on fracture prevention. Doctors disagree but that's what I've read. https://www.ncbi.nlm.nih.gov/books/NBK598429/

@bytheriver
I didn’t have surgery, but have a whole new body filled with aches! It’s just awful!
Hope you get better.