Recent diagnosis of Gastric Malt Non-Hodgkins Lymphoma: Questions

Posted by dbamos1945 @dbamos1945, Jul 14, 2024

I am grateful to have found your helpful organization. I appreciate your help in dealing with this diagnosis of Gastric Malt Non-Hodgkins Lymphoma. What can I expect regarding treatment and follow-up care? What side-effects from each type of treatment? Any dietary suggestions? I appreciate any and all suggestions and your experiences. Thank you!

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Lori, Volunteer Mentor | @loribmt | Jul 15, 2024

Hi @dbamos1945, From my understanding, gastric malt Non-Hodgkin’s lymphoma (marginal zone lymphoma of Mucosa-Associated Lymphoid Tissue~MALT) is generally slow to develop and the stomach is the most common site for the site of MALT lymphoma. Is this where your lymphoma was found?

There are several articles on line which talk about MALT so I’m posting two from credible sources that I think will be helpful for you:
This from MDAnderson.org:
https://www.mdanderson.org/cancerwise/what-is-malt-lymphoma--6-things-to-know.h00-159621801.html
From Cleveland Clinic.
https://my.clevelandclinic.org/health/diseases/25053-malt-lymphoma
With a new diagnosis I know you have a lot of questions and concerns. Until you know what type of treatment plan your doctor has it’s difficult to speculate on what the side effects might be or followup care. Has your doctor discussed treatment options?

dbamos1945 | @dbamos1945 | Jul 19, 2024

In reply to @loribmt "Hi @dbamos1945, From my understanding, gastric malt Non-Hodgkin’s lymphoma (marginal zone lymphoma of Mucosa-Associated Lymphoid Tissue~MALT)..." + (show)

Thank you so much for info for my sister regarding her Gastric MALT Non-Hodgkins Lymphoma. Her oncologist is considering a treatment, but has delayed because of current uptake of Covid in our area. They have “watched &waited” for a couple years and will reconsider in 3 months.
Thank you all for your support. If this topic has future interest please relay posts. Thanks again!

gardeningjunkie | @gardeningjunkie | Mar 12 5:15pm

In reply to @dbamos1945 "Thank you so much for info for my sister regarding her Gastric MALT Non-Hodgkins Lymphoma. Her..." + (show)

@dbamos1945
Today I responded to your posting on a site concerning Perioral Eczema.
I read your profile and noticed your questions about NH lymphoma a blood cancer. I'm currently 77 but I began my battle with eczema at age 50, the same year I began getting ACD eczema I was diagnosed with Chronic Lymphocytic Leukemia, CLL a blood cancer and supposedly incurable form of leukemia. Both ACD and CLL are auto immune diseases.
I smoldered for 10 years doing the "watch and wait" plan for my leukemia then spontaneously my white count and lymphocytes numbers began improving and within 5 years all blood counts were normal with my white count and lymphocytes back to normal and no leukemia markers. I never required treatment because it is held off until necessary since the treatment becomes less effective for CLL cancer with subsequent treatments. CLL has no cure and even though I am free of the disease showing up in my blood counts the leukemia has supposedly reverted back into the bone marrow. If I had another bone marrow biopsy it would be present.
So be hopeful during this "watch and wait" period. Some of us can beat the odds and not become symptomatic.

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