Living with Parkinson's Disease - Meet others & come say hi
Welcome to the Parkinson's Disease group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with Parkinson's or caring for someone with Parkinson's. Let's learn from each other and share stories about living well with Parkinson's, coping with the bumps and offering tips.
Chances are you'll to be greeted by fellow member and volunteer patient Mentor, Teresa (@hopeful33250), when you post to this group.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?
Interested in more discussions like this? Go to the Parkinson's Disease Support Group.
Connect

Hi,
my name is Joel
Hello, my name is Bernadette and I have had Parkinson’s for 10 years. My biggest concern is whether I am on the right medication.
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1 Reaction@knightkris You poor love to have PD and fibromyalgia. The pain and fatique as well as PD symptons will be hard to handle. My advise is to eat well ( look up Mind diet) sleep well, challenge yourself with exercise and socialise as much as can.
@neenee2024 Not at all. You started the first step and reached out. I can tell you if it was not for this site I would have felt more alone. Please continue asking questions and fears. We will lift you up. Remember no question is off the grid. If it bothers you then it bothers others. Best support as a Caregiver I have had. Hugs to you!
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2 Reactions@bern7475 - what medication are you taking right now? What concerns do you have with it?
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1 Reaction@thelasthaunting - hi, Joel, and welcome to Mayo Clinic Connect.
Have you or someone you care about been diagnosed with Parkinson's? If so, what are the major symptoms you or they experience?
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1 ReactionHello @bern7475
I see that you are concerned about your Parkinson's medication. There are many medications used to treat PD. Carbidopa/Levadopa (C/L) is the typical medication that most PD patients begin taking. Is this the med that you are currently taking?
Are you concerned because the medication is not treating your PD symptoms?
@hopeful33250 I think that I’m just not on the right dosage. My symptoms return at about 2 hours after I take the c/l. The time released Rytary doesn’t do much better .
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2 Reactions@bern7475
It sounds like you need to talk with your doctor about an alternative treatment. There are many meds to treat PD, and if you are having a lot of off-times, it may be a good time to have a conversation with your doctor.
What symptoms are the most bothersome for you during your off times? Is it tremors, balance, or something else?
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1 ReactionI am in the process of doing that now. Fingers crossed that we find the right medication/ combination.
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2 Reactions