@kathleen1314
I agree with you wholeheartedly. Fascinating that it provided information in FARSI. The possibilities for AI are endless, but it must be monitored for security’s sake.
@pmhpesp5
I agree. AI is a tool but like any tool it needs to be used safely. The problem is we do not have a good track record with monitoring and legislating to protect ourselves.
But the AI train is leaving the station so it is best to dirct it wisely than moan and stand on the rails.
@daisy17
You are in a difficult situation. From what I read, you have parathyroid disease that affects your calcium but you cannot have surgery?
If so that means that you have to have a dual action of lowering calcium and protecting your bones. Am I understanding this correctly?
I believe that this is the injection etc to which you are referring:
Radiofrequency Ablation (RFA): A needle-like probe uses heat to destroy the overactive parathyroid tissue under local anesthesia.
or sometimes this procedure may be used:
Ethanol Ablation: Medical-grade alcohol is injected directly into the parathyroid tumor to kill the overactive cells.
Some good news though is that if you can take care of the parathyroid then your osteoporosis may completely clear up or at least become much more manageable. The PTH and calcium levels though high aren't horrible it seems so that is good also.
Please continue to let us know how you do. You seem to be in good medical hands and just need time to let this problem reveal its self completely.
@kathleen1314 You are correct about my situation. Since my blood calcium and PTH levels aren't extremely high, just at the normal-high levels or slightly above, my Mayo Dr said we could wait a year and then re-evaluate regarding ethanol ablation. That technique is done 3 times over a 3 day period, and then isn't always successful or has to be redone in the future. My OP is severe so the procedure won't correct it, but may help it from getting worse in the future.
I’ve been getting Prolia injections since 2023, every 6 months. I was not informed about the side effects of going off of it. I have researched since and found out you must switch to a relay drug . At the time I was seeing a Rheumatologist that told me I should not use anything new because my kidneys would not handle that. I got kidney damage after Cancer -Chemo-prednisone and all the other medications I had to take after Stem Cell Transplant. So I’ve been in remission for almost 5 years! All I have now is Severe Osteoporosis. I started taking Thryve Nad+ but I’m not sure it’s really going to help at this point. My DEXA scans had shown improvement until last year. My Rheumatologist suggested other options, however, I’m afraid of new meds. Now I’m told that my insurance will no longer cover Prolia but an alternative is a drug called Jubboti is available and will give me the same results. Is there any supplements that can actually help improve my scores? Thank you.
Under the main heading Osteoporosis, you will find many subheadings, some of which discuss approaches to osteoporosis other than medications. I am not endorsing those (just don't have experience with them) and am not a medical professional.
I’ve been getting Prolia injections since 2023, every 6 months. I was not informed about the side effects of going off of it. I have researched since and found out you must switch to a relay drug . At the time I was seeing a Rheumatologist that told me I should not use anything new because my kidneys would not handle that. I got kidney damage after Cancer -Chemo-prednisone and all the other medications I had to take after Stem Cell Transplant. So I’ve been in remission for almost 5 years! All I have now is Severe Osteoporosis. I started taking Thryve Nad+ but I’m not sure it’s really going to help at this point. My DEXA scans had shown improvement until last year. My Rheumatologist suggested other options, however, I’m afraid of new meds. Now I’m told that my insurance will no longer cover Prolia but an alternative is a drug called Jubboti is available and will give me the same results. Is there any supplements that can actually help improve my scores? Thank you.
@susan73 in addition to Prolia shots, I take a
calcium supplement with Vitamin D.
Calcium Citrate is better absorbed than calcium carbonate.
Citracal.
That’s it.
@susan73 in addition to Prolia shots, I take a
calcium supplement with Vitamin D.
Calcium Citrate is better absorbed than calcium carbonate.
Citracal.
That’s it.
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@pmhpesp5
I agree. AI is a tool but like any tool it needs to be used safely. The problem is we do not have a good track record with monitoring and legislating to protect ourselves.
But the AI train is leaving the station so it is best to dirct it wisely than moan and stand on the rails.
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1 Reaction@kathleen1314 You are correct about my situation. Since my blood calcium and PTH levels aren't extremely high, just at the normal-high levels or slightly above, my Mayo Dr said we could wait a year and then re-evaluate regarding ethanol ablation. That technique is done 3 times over a 3 day period, and then isn't always successful or has to be redone in the future. My OP is severe so the procedure won't correct it, but may help it from getting worse in the future.
Thanks for your concern.
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1 Reaction@dhoff0811 Here is a link to a doctor with some good things to say about Evenity treatment. https://melioguide.us1.list-manage.com/track/click
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1 ReactionI’ve been getting Prolia injections since 2023, every 6 months. I was not informed about the side effects of going off of it. I have researched since and found out you must switch to a relay drug . At the time I was seeing a Rheumatologist that told me I should not use anything new because my kidneys would not handle that. I got kidney damage after Cancer -Chemo-prednisone and all the other medications I had to take after Stem Cell Transplant. So I’ve been in remission for almost 5 years! All I have now is Severe Osteoporosis. I started taking Thryve Nad+ but I’m not sure it’s really going to help at this point. My DEXA scans had shown improvement until last year. My Rheumatologist suggested other options, however, I’m afraid of new meds. Now I’m told that my insurance will no longer cover Prolia but an alternative is a drug called Jubboti is available and will give me the same results. Is there any supplements that can actually help improve my scores? Thank you.
Under the main heading Osteoporosis, you will find many subheadings, some of which discuss approaches to osteoporosis other than medications. I am not endorsing those (just don't have experience with them) and am not a medical professional.
@susan73 in addition to Prolia shots, I take a
calcium supplement with Vitamin D.
Calcium Citrate is better absorbed than calcium carbonate.
Citracal.
That’s it.
-
Like -
Helpful -
Hug
1 Reaction@SusanEllen66
Thank you. I’m going to try to add that to my supplements.