Anybody diagnosed with microscopic colitis?

I can’t get into my account. I haven’t changed my password or my email, but you won’t let me in!

I can’t get into my account. I haven’t changed my password or my email, but you won’t let me in!

Hardest part is not being able to just grab a sandwich quickly when you're starving. I prefer Uti's bread, but they're all yucky. I was a pasta, bread, whole wheat junky, so this was really difficult for me--seems you never get full. Regular corn taco chips and corn tortillas are wheat free as is Kelloggs Rice Crispies. My homemade pizza is on a taco chip now!! It's a good thing I like tacos and can eat dairy. Stock up on meat, cheese, veggies and fruit you can eat quickly. Look for Bob's Red Mill Gluten Free Mighty Tasty Hot Cereal...be careful not to choose the plain organic style. Your digestive system needs the whole grain to move it thru properly. He also makes a decent Pancake Mix...all are expensive. You are correct to be sure you are ready to start a gluten-free diet and stick to it for a week or so, but you will be amazed at how it does a body good. Best of luck.

@glutenfreecuredmycrohns Rice Crispies are made with malt, not gluten free. Sounds like your colitis was actually celiac disease. My wife has both MC and celiac.

@ndough You are saying to me that you can't get in? It looks like you are in your account. I got your reply. I was just getting back to you about the gall bladder being in the MRI. I can't really help you with your account. Sorry. 🙁

@donnagail I sent a direct email to the clinic and I was able to get back in. For some reason they kept asking me to log in but wouldn’t accept either my user name (email) or password. 🤷🏼‍♀️

@ndough Glad you are back online!

After the worst months and then years of my life with
* diarrhea onset May 2022
* after 10 days stool sample revealed Yersinia (associated w-undercooked pork and many people have it on board). Got antibiotics anyway and it not only persisted it got worse.
* New stool sample Sept 22 says the dreaded C-Dif. So new antibiotic for that.
* Nov22 new GI Doc and colonoscopy reveal collagenous microscopic colitis.

So six months after first symptom- 6
months of the kind of diarrhea where you not only can’t leave the house, you can’t be more than 25 ft from the Loo, I finally had a miraculous cure with Budesonide after a 3 month program.

I have since relapsed twice, was put back on a mini program and am now on lowest dose as maintenance program - 3.5 YEARS after initial symptom.

There are multiple known medication triggers. I stopped chronic use of NSAIDs and PPIs. As someone with RA and gout, I would give my kingdom for a freaking dose of ibuprofen. But not in the cards.

I can describe it dispassionately now. But it has been absolutely dreadful. I have a 3 yr old Grandchild in another state that I have never visited because I can’t bring myself to fly. .

I hope you never need to experience any of that