@tamig
My Dr said last week, there was a clinical trial I would have qualified for, but it closed. He said he would let me know when another opened up.

Do you know how to find when Clinical Trials are open or coming or anything at all regarding them? Haha!

Thank you so much for responding back to me!

@tamig The side effects for me on statins, both Lipitor, then Crestor, and then Repatha were almost-debilitating muscle stiffness. The first time it happened, on 80mg of Lipitor, I could barely walk; if you've ever had a back spasm that brings you to your knees where you can't walk, the effect was the same, except my back hadn't spasmed. I went to an urgent care.

Eventually, I was put on Crestor and three weeks in, the same; I sent a panicked message to my PCP through MyChart. So I was deemed statin-intolerant.

The side effects were the same on Repatha, starting at about the sixth injection. And my back muscles were so tight, that trying to do a cat/cow yoga pose, which is a gentle stretch, made my back spasm. The worst thing for me was how long it took to clear my system.

I am in Louisville; I went to the Rochester hospital. I learned about the statin intolerant clinic here on this site; my PCP filled out the referral. I don't know for sure; I just assumed the statin-intolerant clinic was only in Rochester. I know there's a Mayo Clinic in Jacksonville, FL, and one in Phoenix/Scottsdale.

I felt terrible during the trip and while I was there; apart from that, it was a very nice experience. Aces across the board. There is a subway in Rochester, not for a train, but an underground network that connects the hotels to the hospital; there are shops and restaurants there. I was originally supposed to go in January; it was going to be very cold then, but you actually don't even have to go outside. But I felt so bad in. January I had to cancel and went mid-Feb., after I had been off Repatha for 90 days. But it's all really convenient there, and every employee I came into contact with was helpful, kind, professional.

Your lipo number is something else. I hope you can get it under control.

As you are starting your first dose of Repatha, I'd just say it's important to go into it thinking that it will work. I'm afraid I've told some horror stories here. And people have all kinds of differnt side effects; I see flu-like symptoms mentioned a lot. I didn't even have any injection-site problems, ever; it was super easy. But you will also read that people have amazing success on it; I've read people saying their LDL went to 15. I really wish it had worked for me; I wish statins had, for that matter. But that ship has sailed.

Wishing you much success.