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Caregiver to adult son with astrocytoma

Posted by thombolina @thombolina, Jan 31 10:25am

I would love to connect with someone out there who is caring for a loved one with astrocytoma.

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michelle999 | @michelle999 | Feb 25 10:06am

My cousin who is only 28, was just diagnosed yesterday with grade 4 Astrocytoma. He was born with NF 1, and has had a hard life already. He had an MRI yesterday to see if it had spread to his spine (we are waiting on those results today) I am totally devastated. We are undecided with chemo/radiation, as it seems it will only give him a couple of months more to live, but miserable months.

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Colleen Young, Connect Director | @colleenyoung | Mar 8 8:22pm
In reply to @michelle999 "My cousin who is only 28, was just diagnosed yesterday with grade 4 Astrocytoma. He was..." + (show)
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My cousin who is only 28, was just diagnosed yesterday with grade 4 Astrocytoma. He was born with NF 1, and has had a hard life already. He had an MRI yesterday to see if it had spread to his spine (we are waiting on those results today) I am totally devastated. We are undecided with chemo/radiation, as it seems it will only give him a couple of months more to live, but miserable months.

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@michelle999, that is such hard, sad news to get for your cousin and the whole family. What did your cousin decide about treatment? Does he and your family have a palliative care team and hospice support?

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