How can I end Nonstop Recurrent MRSA infections?

Posted by tommy22 @tommy22, Apr 6, 2022

Hello All,

I was first diagnosed and hospitalized in 2014 where I had 3 INDs and spent 3 weeks in the hospital with MRSA on my inner thighs. I was on at home IV antibiotics and it went away(except for a few flare ups) until 2018. After that it became more frequent for 2 years, roughly 6-8 per year. Since 2020, I have been on nonstop antibiotics (linezoid or doxycycline) and it has now been attacking my nose(nares) mostly.
I followed the nose creams and 2 weeks antibiotics prescription, but it would come back a week later after finishing each round. Now I just finished a 3 month run of doxy and have it again 2 weeks later.
I'm becoming exhausted and I have a people to care for and am always worried they will get this. I clean all the time and keep myself clean. Multivitamins, healthy food, etc. Also worried soon antibiotics won't work and it comes on so aggressive.
All the ID, primary, and dermatologists I've seen just keep doing the same thing and I'm getting worse.
I've looked into the studys on pulsing blue light, peroxide solutions, new drugs but I can't seem to get anyone interested, or has even read what I have.
Can someone help? Are there trials out there for something new? A different combination of drugs or new therapys?

Appreciate your time.

Tommy22

Interested in more discussions like this? Go to the Infectious Diseases Support Group.

Anyone aware of recent trials regarding chronic MRSA skin infections? I’ve had 15 infections with and without antibiotic treatment. I mostly treat myself with warm compresses up to 3x/day and applying mupiricin ointment. I fear one of these times I will be dealing with a blood infection.

REPLY
Profile picture for tommy22 @tommy22

Thank you for the reply! The study has given me a more direct plan, than the varying I've been told to do or have read.

I'm looking at the open trials, but I do not fit into the criteria whether it be age, location, etc. I will monitor this page for upcoming and read up more on the completed ones.

I have been to multiple specialists, but they prescribe the exact same thing(zyvox). It wore me down since it was roughly a month on out of 6 weeks for 2 years. Luckily I found a dermatologist who is at least giving me doxy low dose to keep it at bay. I feel I've exhausted my doctor options based on what my primary has said is available to me. To be fair, I am not noticing much difference to the standard recommendations online. But it is frustrating that they can see it is not working but doing the same thing. Crossing fingers something new comes out soon.

Jump to this post

Hi can I ask if you were ever able to eradicate your mrsa? I’m
in a tough place.

REPLY
Profile picture for kurt1900 @kurt1900

Anyone aware of recent trials regarding chronic MRSA skin infections? I’ve had 15 infections with and without antibiotic treatment. I mostly treat myself with warm compresses up to 3x/day and applying mupiricin ointment. I fear one of these times I will be dealing with a blood infection.

Jump to this post

Hey how long have you been dealing with mrsa and did you ever resolve it?

REPLY
Profile picture for stellalexi2 @stellalexi2

Thank you so much gingerw! I will definitely be making calls to the places you listed. I was in the hospital for 6 days after surgery, and surgeon had ordered a wound vac to be on my foot. After one day the wound vac broke and I waited for 6 days for a replacement to be provided. It was never done and they just gave me oral anti-biopics daily. The nurses were supposed to change bandages daily, but were busy and short-handed, so I changed the bandages by myself with only the saline that was provided in the room.
After the 5th day , the hospitalist Dr .still had no expected date to get the wound vac replacement in. I spoke with a Home Health doctor that said the HH could get a wound vac set up at home .
I told the hospitalist this and asked if I could be discharged and get home vac set up at home. He refused with no explanation so I left AMA and went home and set up the HH. It has been 10 days, with no treatment except cleaning and changing bandages with saline by nurses every other day. I don’t have any idea why this had been such an impossible nightmare. I am afraid of losing my foot or worse and the medical people don’t seem to give a damn!
I have full Medicare AND Tricare for Life insurance, so I know it’s not that. I am going to get medical transport to take me to UT Southwestern Hospital emergency room in Dallas to see if they will do something. I believe the infection had gotten to my bones because both of my legs have stayed numb for 2 days .
I will call the places you mentioned to see if they can help in any way.
Im going stir crazy because of isolating myself from others to keep this from spreading to others.
I am so very blessed to have stumbled on to this website to let me vent about all of this.
I am 66 years old and this is the first time I’ve had any problem with getting treatment from hospital, doctors and home health. Is this how people are treated after they reach Senior status everywhere or is it me?
I apologize for not putting a photo, but I do not know how to do it. After I get better I will have someone help me add on my profile .Thank all for reading and welcome solutions to help.
God Bless This Community!!

Jump to this post

@stellalexi2
So I'm sorry to hear about your situation. I don't know if my information can help you or not I can only tell you what I've been through. To keep it short it was a car wreck and many surgeries to my right leg That ended up in me having mrsa stuck in my hip joint and not being able to get the last surgery I need which is a prosthetic hip. The damage from the wreck to my hip is so bad I have to have a custom hip built and they will not do it until the infection is gone. I have had 4 surgeries debris and replacing antibiotic hips. Each surgery I receive a picc line and go through a 6 week IV antibiotic regiment. Currently on doxycycline but have done vancomyson also. I am currently working with infectious disease and a top surgeon out of Vanderbilt Tennessee. Each surgery I get sent home with 2 wound vacs. 1 is a wound drained reservoir the other is a provina 8 day wound vac. These wound vacs are made to remove Any type of drainage from the surgery area. Neither of them are made to last more than 8 days after surgery and then you are to just keep the area clean and dry. I wish you the best.

REPLY
Please sign in or register to post a reply.