Neuropathy treatments: How to avoid scams?

Posted by wideawakechas @wideawakechas, Oct 26, 2021

Has anyone heard of or tried a pill treatment called Vita Soothe Pro? Nerve Savior?

Interested in more discussions like this? Go to the Neuropathy Support Group.

Profile picture for beyhan @beyhan

Sorry, forgot to say in the beginning that the product is Presgara.

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I tried Presgara. It worked for 7 days then the pain and burning at night came back. I stayed on it for about a month hoping relief would come. It didn’t. I got my money back for all 6 bottles! Now I’m trying Nerve Flow. It’s not working but I’ve only taken it for 17 days. Still have pain in toes! I’ll probably send this back for a refund. The best one I’ve found so far is Nerve Control 911. Quiets burning & pain. Next I’m going to try NervoLyn. It is also promoted by Barbara O’Neil. As long as the capsules come with a money-back guarantee, I’m willing to try! Always with the hope of finding relief from pain & burning.

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Any ad that claims "Big Pharma" is out to stop this ad, is a scam. Plus being natural is no big deal. Most of our drugs and meds started from natural ingredients. Aspirin came from willow bark. The modern aspirin is a purer, quality and consistent drug than boiling willow bark. The amount and strength of aspirin will vary from tree to tree and by the time of the year.

Why do drugs cost so much? First level answer is because of our drug production laws. Second level, a researcher has an idea. Gets initial funding from the company. The idea may or may not work, less than 1% of the ideas work as intended or fail for other reasons. Once the formula settles down and is reproduceable, it goes into three levels of testing. Usually before the testing is started, the drug is patented. Once the patent is approved, the clock starts. (A patent is good for 14 years and is renewable one time for another 14 years.) Testing phase one is limited testing on animals, usually lab rats and mice. Phase two is limited testing on other animals and people. Part of phase two is finding the "correct" dosage. Phase three is full scale people testing. The testing usually takes seven to as much as fourteen years to get successful results. At which point the company needs to renew the patent. If the drug looks like it does what it is supposed to do, the company will renew the patent finish any other testing and go into production. Only 7% of the drugs created make it to production, Today's cost of successfully finding a drug is often over a billion dollars. It isn't a case of gouging the customer, as it is funding more research. Imagine a drug for disease A, someone happens to accidently give it to a person who has disease B and it works! Now the company has to do more testing for B. And more testing for people who have both A and B. We want our drugs to work with minimum side effects and on as many diseases as possible. We also need to know what long term effects are for using a drug.

Nne of the testing is cheap. If you have long term usage, then you need long term tracking and analysis. Believe me big pharma has enough on its plate to watch than worry about some natural ingredients mixed in the right way to cure disease C, D, or E. Or restores acute forms A or B. I became a Vegan because it was a diet change that didn't require any special drugs. My diabetes was caused by eating too much fat and sugar. Once I understood what was going on in my body, I made corrections. I loved to eat American-Chinese food that is loaded with fat, both animal and vegetable fat. It would take my body three days to get my blood sugar back to normal. Drinking a coke, one eight class, was less than a day. Eventually, I started taking Insulin. By the time the Endocrinologist suggested the book, I was taking 50 units of Insulin a day. One month after starting the Vegan diet, my Insulin requirement dropped back to ten units per meal. I now take 10 units of Novolog (fast acting) per day and 8 units of Lantus (slow acting) per day. My A1c is teasing 7.0 and I am having a tussle with trying to keeping it below 7.0.

Over two years ago I started using Trulicity and then Ozempic. I went from 245 to 180 pounds or about 30 kilos. I feel I need to loose another 10 to 15 pounds. Then I might be off of Novolog. Meanwhile I have started ding machine workouts for slow weight lifting for 1.5 hours three day a week. I can get out of bed easier and go and down my stairs faster. Over time my body has sustained various minor injuries, especially on my right side. My most recent injuries are on my right foot. I went to Scotland through Iceland for a family vacation. By traveling through Iceland the trip is two-five hour flights versus one-ten hour flight. You can stop over in Iceland for as long as two weeks. Iceland is a geothermal power generation country. The main power company has a large cooling pond called the "Blue Lagoon" with two big signs. One is a warning that if you are diabetic, you should not go in because you may not feel the hottest hot water (100 to 105 degrees). The other is an ad stating 1.5 million people visited last year and we clean the lagoon twice a year. The ad is really a warning. The 1.5 million came from all over the world. They are carrying bugs your body has little or no defense against. I has a blister on my right big toe that opened in the water and bled in the shower. After two weeks in Scotland, I woke up and my right foot was cherry red and moving up my leg. I went to the Hospital in Inverness and spent two days there. I came home and went to St. Mary in Rochester. I was given antibiotics both places. The surgeon sent me home for two weeks for my skin to heal and then he cut off the first bone of my big toe.

Recently, I was doing some heal-toe exercises at home and I broke my right second toe. (The big toe wasn't protecting it. My interpretation) It has healed. I have also injured my right ankle a long time ago. While my left side is uninjured, it is sympathetic for the right side and I normally walk like a drunken sailor {again, my interpretation) with the same amount of balance. Yes, I am left-handed and in my right brain.

REPLY
Profile picture for rollingf @rollingf

Any ad that claims "Big Pharma" is out to stop this ad, is a scam. Plus being natural is no big deal. Most of our drugs and meds started from natural ingredients. Aspirin came from willow bark. The modern aspirin is a purer, quality and consistent drug than boiling willow bark. The amount and strength of aspirin will vary from tree to tree and by the time of the year.

Why do drugs cost so much? First level answer is because of our drug production laws. Second level, a researcher has an idea. Gets initial funding from the company. The idea may or may not work, less than 1% of the ideas work as intended or fail for other reasons. Once the formula settles down and is reproduceable, it goes into three levels of testing. Usually before the testing is started, the drug is patented. Once the patent is approved, the clock starts. (A patent is good for 14 years and is renewable one time for another 14 years.) Testing phase one is limited testing on animals, usually lab rats and mice. Phase two is limited testing on other animals and people. Part of phase two is finding the "correct" dosage. Phase three is full scale people testing. The testing usually takes seven to as much as fourteen years to get successful results. At which point the company needs to renew the patent. If the drug looks like it does what it is supposed to do, the company will renew the patent finish any other testing and go into production. Only 7% of the drugs created make it to production, Today's cost of successfully finding a drug is often over a billion dollars. It isn't a case of gouging the customer, as it is funding more research. Imagine a drug for disease A, someone happens to accidently give it to a person who has disease B and it works! Now the company has to do more testing for B. And more testing for people who have both A and B. We want our drugs to work with minimum side effects and on as many diseases as possible. We also need to know what long term effects are for using a drug.

Nne of the testing is cheap. If you have long term usage, then you need long term tracking and analysis. Believe me big pharma has enough on its plate to watch than worry about some natural ingredients mixed in the right way to cure disease C, D, or E. Or restores acute forms A or B. I became a Vegan because it was a diet change that didn't require any special drugs. My diabetes was caused by eating too much fat and sugar. Once I understood what was going on in my body, I made corrections. I loved to eat American-Chinese food that is loaded with fat, both animal and vegetable fat. It would take my body three days to get my blood sugar back to normal. Drinking a coke, one eight class, was less than a day. Eventually, I started taking Insulin. By the time the Endocrinologist suggested the book, I was taking 50 units of Insulin a day. One month after starting the Vegan diet, my Insulin requirement dropped back to ten units per meal. I now take 10 units of Novolog (fast acting) per day and 8 units of Lantus (slow acting) per day. My A1c is teasing 7.0 and I am having a tussle with trying to keeping it below 7.0.

Over two years ago I started using Trulicity and then Ozempic. I went from 245 to 180 pounds or about 30 kilos. I feel I need to loose another 10 to 15 pounds. Then I might be off of Novolog. Meanwhile I have started ding machine workouts for slow weight lifting for 1.5 hours three day a week. I can get out of bed easier and go and down my stairs faster. Over time my body has sustained various minor injuries, especially on my right side. My most recent injuries are on my right foot. I went to Scotland through Iceland for a family vacation. By traveling through Iceland the trip is two-five hour flights versus one-ten hour flight. You can stop over in Iceland for as long as two weeks. Iceland is a geothermal power generation country. The main power company has a large cooling pond called the "Blue Lagoon" with two big signs. One is a warning that if you are diabetic, you should not go in because you may not feel the hottest hot water (100 to 105 degrees). The other is an ad stating 1.5 million people visited last year and we clean the lagoon twice a year. The ad is really a warning. The 1.5 million came from all over the world. They are carrying bugs your body has little or no defense against. I has a blister on my right big toe that opened in the water and bled in the shower. After two weeks in Scotland, I woke up and my right foot was cherry red and moving up my leg. I went to the Hospital in Inverness and spent two days there. I came home and went to St. Mary in Rochester. I was given antibiotics both places. The surgeon sent me home for two weeks for my skin to heal and then he cut off the first bone of my big toe.

Recently, I was doing some heal-toe exercises at home and I broke my right second toe. (The big toe wasn't protecting it. My interpretation) It has healed. I have also injured my right ankle a long time ago. While my left side is uninjured, it is sympathetic for the right side and I normally walk like a drunken sailor {again, my interpretation) with the same amount of balance. Yes, I am left-handed and in my right brain.

Jump to this post

@rollingf Correction:

Any ad that claims "Big Pharma" is out to stop their ad, is a scam. Plus being natural is no big deal. Most of our drugs and meds started from natural ingredients. Aspirin came from willow bark. The modern aspirin is a purer, and consistent quality drug than boiling willow bark. The amount and strength of aspirin will vary from tree to tree and by the time of the year.

Why do drugs cost so much? First level answer is because of our drug production laws. Second level, a researcher has an idea. Gets initial funding from the company. The idea may or may not work, less than 1% of the ideas work as intended or fail for other reasons. Once the formula settles down and is reproduceable, it goes into three levels of testing. Usually before the testing is started, the drug is patented. Once the patent is approved, the clock starts. (A patent is good for 14 years and is renewable one time for another 14 years.) Testing phase one is limited testing on animals, usually lab rats and mice. Phase two is limited testing on other animals and people. Part of phase two is finding the "correct" dosage. Phase three is full scale people testing. The testing usually takes seven to as much as fourteen or more years to get successful results. At which point the company needs to renew the patent. If the drug looks like it does what it is supposed to do, the company will renew the patent finish any other testing and go into production. Only 7% of the drugs created make it to production, Today's cost of successfully finding a drug is often over a billion dollars. It isn't a case of gouging the customer, as it is funding more research. Imagine a drug for disease A, someone happens to accidently give it to a person who has disease B and it works! Now the company has to do more testing for B. And more testing for people who have both A and B. We want our drugs to work with minimum side effects and on as many diseases as possible. We also need to know what long term effects are for using a drug.

Nne of the testing is cheap. If you have long term usage, then you need long term tracking and analysis. Believe me big pharma has enough on its plate to watch than worry about some natural ingredients mixed in the right way to cure disease C, D, or E. Or restores acute forms A or B.

I became a Vegan because it was a diet change that didn't require any special drugs. My diabetes was caused by eating too much fat and sugar. Once I understood what was going on in my body, I made corrections. I loved to eat American-Chinese food that is loaded with fat, both animal and vegetable fat. It would take my body three days to get my blood sugar back to normal. Drinking a coke, one eight class, was less than a day. Eventually, I started taking Insulin. By the time the Endocrinologist suggested the book, I was taking 50 units of Insulin a day. One month after starting the Vegan diet, my Insulin requirement dropped back to ten units per meal. I now take 10 units of Novolog (fast acting) per day and 8 units of Lantus (slow acting) per day. My A1c is teasing 7.0 and I am having a tussle with trying to keeping it below 7.0.

Over two years ago I started using Trulicity and then Ozempic. I went from 245 to 180 pounds or about 30 kilos. I feel I need to lose another 10 to 15 pounds. Then I might be off of Novolog. Meanwhile I have started doing machine workouts for slow weight lifting for 1.5 hours three day a week. I can get out of bed easier and go and down my stairs faster. Over time my body has sustained various minor injuries, especially on my right side. My most recent injuries are on my right foot. I went to Scotland through Iceland for a family vacation. By traveling through Iceland the trip is two-five hour flights versus one-ten hour flight. You can stop over in Iceland for as long as two weeks. Iceland is a geothermal power generation country. The main power company has a large cooling pond called the "Blue Lagoon" with two big signs. One is a warning that if you are diabetic, you should not go in because you may not feel the hottest hot water (100 to 105 degrees). The other is an ad stating 1.5 million people visited last year and we clean the lagoon twice a year. The ad is really a warning. The 1.5 million people came from all over the world. They are carrying bugs your body has little or no defense against. I has a blister on my right big toe that opened/loosened in the water and bled in the shower. After two weeks in Scotland, I woke up and my right foot was cherry red and moving up my leg. I went to the Hospital in Inverness and spent two days there. I came home and went to St. Mary in Rochester. I was given antibiotics both places. The surgeon sent me home for two weeks for my skin to heal and then he cut off the first bone of my big toe.

Recently, I was doing some heal-toe exercises at home and I broke my right second toe. (The big toe wasn't protecting it. My interpretation) It has healed. I have also injured my right ankle a long time ago. While my left side is uninjured, it is sympathetic for the right side and I normally walk like a drunken sailor {again, my interpretation) with the same amount of balance. Yes, I am left-handed and in my right brain. I also am feeling better.

REPLY
Profile picture for alicebrown @alicebrown

I tried Presgara. It worked for 7 days then the pain and burning at night came back. I stayed on it for about a month hoping relief would come. It didn’t. I got my money back for all 6 bottles! Now I’m trying Nerve Flow. It’s not working but I’ve only taken it for 17 days. Still have pain in toes! I’ll probably send this back for a refund. The best one I’ve found so far is Nerve Control 911. Quiets burning & pain. Next I’m going to try NervoLyn. It is also promoted by Barbara O’Neil. As long as the capsules come with a money-back guarantee, I’m willing to try! Always with the hope of finding relief from pain & burning.

Jump to this post

@alicebrown I don't believe that Barbara O'Neil promotes medications. She and her husband have posted that those ads do not come from her. Do more research.

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Profile picture for debbiebass @debbiebass

@alicebrown I don't believe that Barbara O'Neil promotes medications. She and her husband have posted that those ads do not come from her. Do more research.

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@debbiebass I don’t care if Barbara O’Neil is involved or not. I’m just looking for relief. I’ll try most anything as Big Pharma has failed me!

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Profile picture for hunt @hunt

I noticed my wife watching an infomercial on her phone one morning and after awhile she showed me Dr. Sanjay Gupta claiming to offer a new product for NP. It was long and I noticed she finally hit the purchase button and said wait, lets research it first, It was too late and the sale when through. I checked online and sure enough the Gupta add is a deep fake. I immediately cancelled the credit card she used. Maybe 3 minutes elapsed time.
Well they got the money and some button was hit and the order was doubled. Thought we were had. However I went to my bank the nest morning and since I cancelled the card and claimed fraud immeditely they saw fit to return my funds to the account. Got lucky. saved $500 bucks.
Read- Research- Before purchasing. All those adds are fakes for common products available at the health store.

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@hunt absolutely there’s many fraudulent ads using AI to manipulate our thinking with supposedly well known people such as Clint Eastwood claiming wild capabilities for these so-called cures for numerous issues such as neuropathy!

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Profile picture for bhappy @bhappy

Is alpha lipoic acid a prrscription or Omer the counter?

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@bhappy ALA is OTC but make sure that you get the R-form ALA.

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Consumer Lab is a useful organization that tests supplements of all sorts. These are not regulated by the FDA. It's amazing how many don't have what is claimed in them or contain impurities such as lead. But I really like their review of the studies testing if products do what they're supposed to do. A lot of claims made are based on little very scientific evidence. But it's interesting reading especially if you spend a lot on supplements.

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Profile picture for llmartin @llmartin

Consumer Lab is a useful organization that tests supplements of all sorts. These are not regulated by the FDA. It's amazing how many don't have what is claimed in them or contain impurities such as lead. But I really like their review of the studies testing if products do what they're supposed to do. A lot of claims made are based on little very scientific evidence. But it's interesting reading especially if you spend a lot on supplements.

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@llmartin I have found many research projects that are using ALA and methylated B12, in combination with other supplements. There seems to be an agreement that this approach is valid.

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I am new to neuropathy and I am seeking advice from individuals who have sought out and used a Neurologist for treatment. Were the treatments effective and to what extent? What were the specific treatments that were used? Medicare won't cover the costs of such treatments so it becomes a significant investment which is not yet backed up by scientific proof.

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