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Neuropathy treatments: How to avoid scams?

Neuropathy | Last Active: Sep 24 1:36pm | Replies (894)

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Profile picture for banjoman @banjoman

I am new to neuropathy and I am seeking advice from individuals who have sought out and used a Neurologist for treatment. Were the treatments effective and to what extent? What were the specific treatments that were used? Medicare won't cover the costs of such treatments so it becomes a significant investment which is not yet backed up by scientific proof.

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Replies to "I am new to neuropathy and I am seeking advice from individuals who have sought out..."

Welcome @banjoman, I'm sure you are right about a lot of so called neuropathy treatments not being covered by Medicare. I guess it depends on your specific diagnosis and your symptoms. Nothing is covered for me other than the neurologist visit and diagnosis which was idiopathic small fiber peripheral neuropathy with only numbness and some tingling in my feet and legs but no pain. There is no medication or recognized treatment that helps with the numbness. I shared my neuropathy journey in another discussion here - https://connect.mayoclinic.org/comment/310341/.

Here's some information on what Medicare covers for neuropathy treatments - https://www.medicare.org/articles/does-medicare-cover-neuropathy/. The best suggestion I have is to learn as much as you can about your neuropathy condition/diagnosis and what treatments may be available that might provide some relief as there really is no cure. If you haven't already seen the following neuropathy sites, they are a good place to learn more.
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/
-- Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview

There are many different discussions in the Neuropathy Support Group where you might find other members who have shared treatments that have helped along with other information. Here's a link that lists the different discussions - https://connect.mayoclinic.org/group/neuropathy/.

Have you already been diagnosed by a neurologist? Do you mind sharing what your main symptoms are?

@banjoman
I have a different question.
My husband has Neuropothy without pain ( good) but he has no feeling in his feet. It is the discoloration that worries me. If he lays down and elevates his feet the discoloration seems to subside a bit. He does have WM and was treated and is doing fine otherwise. He is still anemic.
Can anyone recommend a physician that has a specialty with this?
Thanks in advance.
MH