Living with lung cancer - Introduce yourself & come say hi

Welcome to the Lung Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with lung cancer or caring for someone with lung cancer. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. Chances are you'll to be greeted by volunteer patient Mentors and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Lung Cancer Support Group.

Profile picture for dianelivingston47 @dianelivingston47

@dianelivingston47
It is stage 4 nsclc it has spread to numerous parts of my body, mostly bones but also to brain and other lung. Am on Tagrisso and will also have Zometa as soon as my dental work is done.
Have taken Tagrisso for a week and no side effects yet.

Jump to this post

@dianelivingston47, I’m so sorry to read this Diane. Hugs to you, but know that many of us live with stage 4 mutation based cancers. Targeted therapies have helped many of us live longer productive lives. I’m close to six years post-diagnosis.
Hoping that the Tagrisso continues to be kind to you.

REPLY

Hello everyone. Figured I would do this before I asked any questions. My name is Celeste. I was diagnosed with NSC lung cancer in January and had a lobectomy on February 23rd. My breathing troubles started at the end of August after having had Covid but I got my first glimpse of this at the end of September when my doctor (God bless her) ordered a chest x-ray for me and kicked off this whole thing. I'm 45 and a single mom if 3 but only 1 is still a minor. It's been a whirlwind for me but I am glad to be here.

REPLY
Profile picture for onethinkitty @onethinkitty

Hello everyone. Figured I would do this before I asked any questions. My name is Celeste. I was diagnosed with NSC lung cancer in January and had a lobectomy on February 23rd. My breathing troubles started at the end of August after having had Covid but I got my first glimpse of this at the end of September when my doctor (God bless her) ordered a chest x-ray for me and kicked off this whole thing. I'm 45 and a single mom if 3 but only 1 is still a minor. It's been a whirlwind for me but I am glad to be here.

Jump to this post

@onethinkitty Sorry to hear of your lung cancer, which I have too. Good your doctor caught it! I have found this Mayo support to be helpful and informative. Hugs.

REPLY
Profile picture for onethinkitty @onethinkitty

Hello everyone. Figured I would do this before I asked any questions. My name is Celeste. I was diagnosed with NSC lung cancer in January and had a lobectomy on February 23rd. My breathing troubles started at the end of August after having had Covid but I got my first glimpse of this at the end of September when my doctor (God bless her) ordered a chest x-ray for me and kicked off this whole thing. I'm 45 and a single mom if 3 but only 1 is still a minor. It's been a whirlwind for me but I am glad to be here.

Jump to this post

@onethinkitt I had a lobectomy on my upper left lung on February 24. It was confirmed as first stage , they checked 30 lymph nodes and all came back negative. good to hear your story.

REPLY
Profile picture for onethinkitty @onethinkitty

Hello everyone. Figured I would do this before I asked any questions. My name is Celeste. I was diagnosed with NSC lung cancer in January and had a lobectomy on February 23rd. My breathing troubles started at the end of August after having had Covid but I got my first glimpse of this at the end of September when my doctor (God bless her) ordered a chest x-ray for me and kicked off this whole thing. I'm 45 and a single mom if 3 but only 1 is still a minor. It's been a whirlwind for me but I am glad to be here.

Jump to this post

@onethinkitty, welcome Celeste, thankfully you had that chest xray! I always tell people that if they are offered one, take it! Mine was first seen on xray in an urgent care office. How’s your recovery going? Did you happen to have any biomarker testing done on the removed tumor?

REPLY

Posted here a few weeks ago after my PAT scan discovered NSCLC in my left lung. Oncologist said it's about the size of a grape and will be removed by surgery with no chemo or radiation needed. Been through every test you could imagine and now headed to surgery on Thursday. Hoping for the best and an easy recovery. I have heard some horror stories about recovery and others seem to go well. Will update after the surgery.

REPLY

Hi my name is Leticia l have stage 4 lung cancer I'm on Tagrisso

REPLY
Profile picture for leticiah70 @leticiah70

Hi my name is Leticia l have stage 4 lung cancer I'm on Tagrisso

Jump to this post

@leticiah70 Hi. I’m also stage 4 lung cancer and started Tagrisso 2 weeks ago, and had first chemo. I’m doing ok so far on Tagrisso, hope you are too.

REPLY
Profile picture for bobca @bobca

Posted here a few weeks ago after my PAT scan discovered NSCLC in my left lung. Oncologist said it's about the size of a grape and will be removed by surgery with no chemo or radiation needed. Been through every test you could imagine and now headed to surgery on Thursday. Hoping for the best and an easy recovery. I have heard some horror stories about recovery and others seem to go well. Will update after the surgery.

Jump to this post

@bobca, I hope the surgery went well, and you are taking time to recover. Don't push too hard to fast. Did everything go as planned? Do you have a follow up appointment to review what was found once they were in surgery?

REPLY
Profile picture for leticiah70 @leticiah70

Hi my name is Leticia l have stage 4 lung cancer I'm on Tagrisso

Jump to this post

Welcome @leticiah70. I read on another post that you've had multiple surgeries for your lung cancer. Were those completed prior to you advancing to stage IV? Is the tagrisso tolerable for you? I'm on a different targeted therapy for ALK lung cancer. The treatments can be great but can come with some significant side effects too! Hugs.

REPLY
Please sign in or register to post a reply.