← Return to Myqorzo: has anyone tried this new alternative to Camzyos?

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Profile picture for gwenm @gwenm

@joanallione Just reading about your concerns of stopping Camzyos. I have had "moderate" HOCM diagnosed 1988. Started Camzyos 7/22 and about a year later ejection fraction dropped to 49% so Camzyos was 'held' due to protocol. Just wanted you to know that the 4 weeks of 'washout' wasn't frightening or terribly difficult. I was more conscious of how I felt (hypervigilent) but in reality didn't not much increase in shortness of breath until about the end of third week. Was definitely less bothersome than anticipated. I was, however, only on 5 mg at the time and in atrial fibrillation; once restarted (at 2.5 mg) my ejection fraction increased. Everyone is difficult of course, but just wanted to comment that the 4 weeks it was stopped were not terribly difficult.

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Replies to "@joanallione Just reading about your concerns of stopping Camzyos. I have had "moderate" HOCM diagnosed 1988...."

@gwenm I agree. I’ve been off camzyos for 15 weeks, initially due to a low EF but it took that long for my gradients to go back above 30 (so I can start aficamten). I only started to feel more SOB in the last week or two. The “washout” period was easier than I thought as the drug sticks around a long time.