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Bullous Pemphigoid

Autoimmune Diseases | Last Active: Mar 5 7:06am | Replies (42)

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Profile picture for linda08 @linda08

I have PV and being treated at Mayo in Phoenix. I have had two treatments with RITUXIMAB January 2026 & Prednisone. This was diagnosed as PV late Dec.2025 after first noticing rash October 26 after surgery October 23, 2025. I had been treated with CIMZIA for 2 1/2 years. I started 20 mg prednisone and when the dose is reduced, I experience flare up. I am looking for any information about this that I can find.
Thank you

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Replies to "I have PV and being treated at Mayo in Phoenix. I have had two treatments with..."

@linda08 I have either PV or MMP. 3 different dermatologists can't agree on which. Symptoms are essentially the same with different histologies. I have been on Dapsone for 2+ years and can't get any progress for Rituximab infusion. Dermatologists seem more interested in Botox/expensive cosmetics than the more involved tx. I have had only a few skin bullae since beginning the Dapsone. Intraoral lesions and ulcers are the worst. My best treatment for those have been DMSO oral rinses and I use DMSO, castor oil and clobetasol on the the skin areas that want to flare up and it shuts them down pretty quickly. I want to ask MD about subcutaneous IG at next appointment. I can do that myself without the infusion hassle.